A ROUGH Memorial Day With A FREE Meal Thanks To Autism :)
May 27, 2014
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Now Reading: A ROUGH Memorial Day With A FREE Meal Thanks To Autism :)
May 27, 2014
It’s 8:41pm on Monday night and I can hear the neighbors behind my house still partying & enjoying their Memorial Day BBQ. But, me, I’m sitting in the dark in Kyle’s bedroom thrilled that I got him to sleep already so the wife and I can watch tv and relax.
It’s been a long, extremely rough, crazy, and exhausting Memorial Day… with a little guilt thrown in.
I’ll get to the guilt first… I feel guilty complaining about Kyle’s bad behaviors because we he has a day or two filled with big seizures and long naps that often follow big seizures wifey and I often wish for & long for things to get back to “normal”.
“I’d much rather him be acting crazy stimmy or hyper or even hitting over all these naps” we often say…
But then we have a day like today and I was BEGGING for a nap…which makes me feel guilty… I was obviously not wishing a seizure of course… but a good old fashioned nap would’ve made the day a bit more manageable / broken the day up a bit.
So why was the day so torturous?
I also don’t think a nice gesture like this needs to “go viral” and be shared around the world.
until it wasn’t anymore… 🙁
Anyway, hope you all had a better day!
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Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).