Tomorrow is a big day for the king! School & the Bionic Man ;)
September 2, 2013
You can also filter by categoriesUncategorized
Sorry, we didn't find anything.
Now Reading: Tomorrow is a big day for the king! School & the Bionic Man ;)
September 2, 2013
Tomorrow is a huge day in the ol’ AD household. The king has his first day of school. It’s only a half day of school which is good because tomorrow afternoon we go to the neurosurgeon’s office and the king gets his bandages removed and the VNS device turned on.
And then we find out what super powers the Bionic King will have. 🙂
Yes tomorrow will be 2 weeks since he had the VNS Surgery and 2 weeks since he had a bath or shower 🙂 and yes he kept the 2 bandages on the whole 2 weeks.
We only had to change the outer bandages twice and we never got to see the scars because the inner bandages stayed put the whole 2 weeks.
Shockingly the bandages, one taped to his neck and one taped near his underarm on the left side, never really bothered him that much.
And by the 6th or 7th day after surgery he seemed pretty much his “normal” self.
I put normal in quotes because his pre-surgery normal wasn’t really that normal. Just like pre-surgery he’s still very sleepy / lazy from his daily trifecta of antiseizure meds…and he’s still having seizures daily…small ones that many of you wouldn’t even notice, but he’s having them…
So the hope is that the VNS device makes a big difference in his seizures so we can reduce some of these meds as soon as possible.
As for school, here’s the schedule. Half days on Tues & Wed, off on Thur & Fri for the Jewish holiday Rosh Hashanah (many public schools in the NYC Metro areas have these days off).
All that is fine, but then next week he’s got half days on Mon & Tues as well. WTF? His first full day of school is next Wed!!
Normally that would annoy me (and it still does a little), but this is one time where Kyle might need the extra time to adjust to 3 new things…(1) adjusting to the vns device and how that feels…sending pulses of electricity to a nerve in his neck might take some getting used to, (2) adjusting to just being back in school after 3 weeks off, and (3) while he’s gonna be in the same school, in the same classroom as last year, with some of the same kids and some of the same teachers aides & assistants, there will be a new teacher and Kyle might have a new 1:1 aide…
So maybe this dipping his foot back in the water schedule (two half days, two days off, 2 half days) will be just what his majesty needs…
Anyway, I’m taking off from work tomorrow to go with wifey to drop the king off, meet the new teacher, then the wife & I will run some errands, pick Kyle up, maybe go to a diner for breakfast/ lunch, and then head to the neurosurgeons office to complete Kyle’s bionic man transformation…
And then hopefully will get the ok to give this kid a bath!
That’s it… OVER AND OUT…
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).
5 People Replies to “Tomorrow is a big day for the king! School & the Bionic Man ;)”
I only saw your post today. I hope school and the turnign on of the VNS device both went well. And I hope Kyle enjoyed the bath.
Goodness me, that bath is going to feel gooooooooood.
Thank you so much AD for allowing us into your little world. I love reading your post. I have been following for almost a year now.Again thank you for sharing the ups and downs with you,wifey and The King.
It's hell when the one thing you look foward to is being able to give your kid a bath-lol! Hope everything goes smooth tomorrow and he has a great first day!
I have read your blog on and on for months now. My son is newly diagnosed…so, we are still in the shock & awe of things.
Will continue to follow you…like a stalker LOL