Day 6 after VNS Surgery… a much more "typical" day
August 27, 2013
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Now Reading: Day 6 after VNS Surgery… a much more "typical" day
August 27, 2013
What a much more “typical” day in the ol’ AD household.
It’s Monday at 8:01pm and I’m sitting in the dark in the kings bedroom writing this on my phone. I just brought him up to bed.
It is 6 days removed from his vns surgery implantation and things are slowly starting to get back to “normal” around here (whatever that means).
The wife reported that he napped a lot less today (only one 45 minute around 11am). And was a lot more “with it”.
They went for a SHORT walk in the park and then went over my wife’s sisters house for a little while this afternoon.
That visit ended when he made it crustal clear he wanted to leave when he hit his aunt. 🙁
When I got home he was raging a bit as well. And he was a bit weepy.
And as bizarre as this may sound… it was good to see.
Less zombie / sleepy behavior and more autistic behavior is a good thing in my book 🙂 It means he’s healing and heading back to normal Kyle I think.
I think finally 6 days after surgery he’s feeling himself enough to know that his bandages are finally pissing him off and that he’s in some pain/ discomfort from the 2 wounds.
After writing my post yesterday about the king’s recovery I’ve learned a few things from chatting with others who’ve had the VNS Surgery and from joining a VNS surgery group on Facebook.
Here’s one thing I’ve learned…even though for many it’s a send you home the same day “procedure” and for Kyle and most children it’s a one night in the hospital “procedure” it’s still SURGERY and for many it kicks your ass big time.
Many I’ve chatted with said they were in pain & discomfort for 1-2 weeks after surgery and some were sent home with Vicodin for their pain.
I guess, stupid me, heard it called a “simple procedure” and thought he’d be back to normal in 2-3 days.
And Kyle was only sent home with instructions to give Tylenol as necessary, no Vicodin.
For the first 4-5 days even Tylenol kinda wasn’t necessary cuz he was totally out of it.
But today I think he was well enough to know that he didn’t feel well…if that makes any sense. And I expect the next few days to be filled with some rage and some Tylenol and maybe some Advil as well.
8 days til we turn the device on so hopefully he’s totally back to pain free normal before then…
8:18pm now and he’s asleep and I’m gonna watch my new tv obsession “Under the Dome”.
Just started watching it…Trying to catch up…
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).
4 People Replies to “Day 6 after VNS Surgery… a much more "typical" day”
Day 6 after VNS Surgery… a much more "typical" day….
Wow!!! really, I am very please to know that Day 6 after VNS Surgery. Hopefully, you are doing the best VNS Surgery here. I am sure if we take your surgery treatment then we can get a best surgery form this surgery institute.
I just rediscovered your blog, which I'd been "following" in Google reader of ra while (but yeah you know about Google reader disappearing). I got a new feed reaader and then saw your blog. It's interesting to read about Kyle's surgery and his recovery from it. I understand you're having mixed feeling sabou thim returning to "typical", becauuse he's raging more na drealizign he'sin ain, but it does meaan he's healing. I will keep following your blog. Will see if I'm alreaady liking your fB page.
Under the dome is amazing! Hope Kyle is feeling better soon, hope it's all worth it in the end for you