The 2 Elephants In The Room On Our Vacation…
August 22, 2012
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Now Reading: The 2 Elephants In The Room On Our Vacation…
August 22, 2012
So we just got back on Monday from a great vacation. A week at a lake in upstate NY. My son Kyle had a GREAT time and if you’ve been reading my Autism Daddy Facebook Page you’ve been seeing all the pics and reading all the sweet details of how well behaved Kyle was and how much he enjoyed himself. And therefore how much the wife and I enjoyed ourselves.
However there was an “elephant in the room” during our vacation…actually 2 elephants…
The first elephant was that Kyle had a few little (2-3 second) dizzy spells, at least one each day. Most of the time they were when he was on the deck looking at the water. It kinda seemed like he got dizzy from staring at the waves. Were they dizzy spells?
Were they mini-seizures? We don’t know. But they didn’t bother him at all so we tried not to let it ruin our week. We figured we’d deal with it when we got home…
And the second “elephant in the room” and on a completely separate note, Kyle developed a weird lump on one of his testicles a few days ago. It didn’t cause him any pain, and we spoke to our pediatrician while away and he said it’s probably not worth cutting your trip short for, but come see him when you are back.
So my wife went today with Kyle to see the pediatrician and he immediately sent them to see a urologist and they confirmed what we all suspected.
Kyle has a hernia. And it will require surgery. It’s not the serious / scary kind that has to be operated on immediately. But it will require surgery…now scheduled for September 19th…
I swear to god, it never ends.
But Kyle has been truly amazing the past few weeks. And my wife said he was great at both dr’s today. Laughing/ amused with all these people touching his junk.
Oh and she mentioned the dizzy spells to his pediatrician today while they were there…and wouldn’t you know it, the kid had one right there in the dr’s office. So the doc saw one first hand…checked his ears, they look fine.
And the doc had no answers… We might need to adjust his meds…maybe he needs a different seizure med or dosage…No one is sure, but it sounds like we’ll be also be back at the neurologist very soon.
That is all…
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).
13 People Replies to “The 2 Elephants In The Room On Our Vacation…”
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So tough, it truly never ends does it? Is there such a thing as a true vacation? I'm not so sure anymore.
Hi I am a new follower to your blog. I was recommended by a friend who has a son who is Autistic and we just found our our 18month old is "Severely Delayed". They did not want to label him with Autism just yet, not until about six months of speech and occupational therapies. I am looking forward to following and sharing in your journey. It may help me with mine. If you would like to take a look at our blog we just started Thursday you are more than welcome to.
It never ends. You said it right…..Murphy's law. It can always get worse. 🙂 Your newest follower. Found you on the top 30 autism babble blogs. Looking forward to reading more.
It's good that you didn't let it ruin your vacation. Hope all goes well with surgery!
No, it never ever ends…I feel for you. I know how it is, when you just about thought that ok i can deal with this, something else pops up. But just like the commentor before me said What doesnt kill us, make us stronger. Am glad you all enjoyed your vacation though 🙂
My mom has had vertigo since she started having seizures a little over a year ago. While in the car she is fine now but when it stops she feels like she is still moving for an hour or more afterward. It's not as bad with her on the Dilantin but the meds they had her on at first she had to hold onto the wall just to walk to the bathroom and got motion sickness easily. I hope that helps some, I will be praying that all goes well for the little guy, mine just had his tonsils out and tubes put in it was scary even though it's the most preformed procedure on children.
Dear God, the more you talk about his health issues, the more I feel like this kid needs to be in to see a metabolic specialist or something–I mean, does he has hypotonia??
My son had an inigual hernia as well, had the repair surgery may 2011 -he was 2 and a half. he slept on and off for a day and a half then was back to normal. *sending good vibes*
i know this want ease your mind.. but my son had double hernia operation and he did fine.. i know like me you wonder does he understand why im putting him through this why would my parents let them do this to me.. but the best thing about our children or well mine he forgets easily and forgives just as easy…
What doesn't kill us makes us stronger!
Sending virtual hugs to you guys.
The dizzy spells might be breakthrough seizures – where the brain is trying to seize, but the meds are doing all they can, so you only see a little clue like that. This happens to my daughter. It could mean a dosage tweak if he's otherwise doing well on the meds. And no, it doesn't end, getting comfortable is never an option 😉
You're right it never ends. On the flip side some things do actually get better or go away, e.g. my Autie used to get Febrile convulsions which now are gone, nice to see the back of them.