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Seizure Free Saturday

As y’all know, Kyle had a return to Seizure Street on Friday. (you can read about that here)

We were prepared for a real rough day yesterday… but Kyle had a much better day. He had a “Seizure Free Saturday”.

In the am, we took him to the doctor to check out his cold so we could nip an infection in the bud…especially since the cold/ fever may have brought the return of the seizures.

The dr’s office was a little rough. The Sat after Christmas & the place was PACKED with sick kids!! So we had to wait over 30+ minutes. But we got thru it…

Before the dr came in, we threw Kyle on the scale and he was 68.6 pounds!! Up 7 pounds in a month!! His increased appetite is mainly thanks to his anti-seizure med, depakote.

The doc then came in and checked him out and found nothing. His chest was clear, his ears were fine. Kyle wouldn’t let him in to see his throat, but whatever. The dr said he was fine. So $25 copay down the drain, we were on our way…

We made a quick trip to the supermarket. Since Kyle was prone to possibly having seizures, we put him in the cart instead of having him walk/ push the cart. He was pretty ok for the supermarket trip…and we got it done fast.

On the way home from the supermarket I’m driving and the wife is checking her personal Facebook page from her phone. She had put this picture of our Christmas tree up…

…with the caption: “Should I fix up this sorry tree? Or is it time to let it go?”

She’s reading me her friends witty responses when I said…

“But you never told them the reason the tree looks like that… You should tell them that your son had a seizure and fell into the tree yesterday.”

And we both burst out laughing.

You gotta laugh about this stuff….or….  🙂

We got home from the dr & supermarket trip around noon and had no plans for the rest of the day because (a) we were expecting snow and (b) we wanted to watch Kyle like a hawk and watch for more seizures and be close to him in case be fell.

Normally the king wants to watch tv all day and is always going to turn the tv on. And we are usually trying to redirect him to his playroom after the tv has been on for awhile.

Yesterday since we wanted to watch him like a hawk I said “let’s let him watch as much tv as he wants so he’ll stay in the living room and it’ll be easier to watch him”

But of course wouldn’t you know it, on the day we left the tv on all day, he wasn’t that interested. And he kept leaving and wandering around his playroom.

But he was a good boy all day. As long as his belly was full he was fine and happy and the cold never really got any worse…although we kept giving him ibuprofen every 6-8 hours just to keep any potential fever away.

All afternoon as we were watching the king like a hawk the wife and I were singing

“seizure boy, oh my little seizure boy”

to the tune of the song “Soldier Boy” by The Shirelles.

You gotta laugh about this stuff….or….  🙂

In the afternoon the wife decided to take down the Christmas tree aka “seizure tree”

And when all the decorations were off I carried the tree out the front door, held it above my head and threw it down into my driveway.

The wife was watching me so to get a laugh out of her as I threw it I yelled…

“F–k you seizure tree!”

We both laughed hysterically. I wonder if the neighbors heard/ saw that.

You gotta laugh about this stuff….or….  🙂

At around 5pm I went upstairs to put my pajamas on and just mysteriously disappeared for an hour to take a nap.

At around 6pm the wife kicked me out to take a nap herself. She got up around 7.

Kyle had a little dinner, watched a lot more tv, and fell asleep on the ottoman at about 8pm, a little earlier than usual probably due to an increase in his anti-seizure med and probably because he was bored and weirded out that we were watching him like a hawk…lol…

I carried him upstairs. The wife started cooking dinner. And the two of us ate sausage & potatoes at around 9pm while watching an “Everybody Loves Raymond” marathon on TV Land.

That was our exciting Saturday… pretty uneventful… but most importantly it was seizure free.

Hope you enjoyed this boring recap of our Saturday…


Written by

Frank Campagna

I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).

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4 People Replies to “Seizure Free Saturday”

  1. Boring can be good….you do have to laugh or…

  2. Meg

    "You gotta laugh about this stuff…or…" is the greatest statement ever. Pretty sure I am going to make this my life's motto. May even have it made into a tshirt!

  3. Glad to hear that things were better on Saturday!

  4. Trinny

    I have an 11-year-old son who has autism. "Boring" days are always welcome lol. At least that means nobody is dismantling the bedroom furniture…