Listen to the long, whirlwind, multi doctor appointment day we have ahead of us..
April 23, 2013
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April 23, 2013
Tues 8:54am — I’m sitting in the Starbucks down the street from the king’s school.
He has a dentist appointment set for 9:30am. Then due to some breakthrough seizures over the weekend his neurologist wants to see him and our only choices were today at 11:30am or wait til May 21st.
So we’ve got a whirlwind day ahead of us.
I just drove him to school in my car and dropped him off at 8:10am and now I’m sitting in Starbucks enjoying breakfast #1.
Wifey will drive the minivan here and pick me up. We’ll get the king from school at 9:15am to go to the dentist. So he’ll have an hours worth of school in the morning.
9:30-10:15am hopefully an easy & fruitful trip to the Medicaid waiver dentist. NOT! We’ve got a bag of books & ipad packed for the waiting room. In the dentist chair I’ll have to sit with him on my lap and hold his hands, shoes off, someone will hold his feet and wifey will hold up the hand mirror I just brought so he can look at himself which he loves and maybe voluntarily open his mouth.
After dentist if time permits we’ll find a diner for breakfast #2 and hopefully enjoy watching his majesty chow down on some pancakes & bacon.
Then at 11:30am we sit in waiting room #2 and wait for Kyle’s neurologist appointment where we talk about his seizures and she listens and then she’ll tweak his meds and we’ll be on our way. Bringing Kyle to that appointment is kinda pointless cuz unless he has a seizure right in front of her there’s nothing she can learn by looking at him and unfortunately she can’t ask him questions. But they gotta see the patient…thats the way things work. So he’ll probably be in her examination room bouncing off the walls and getting popcorn & Cheerios everywhere while we talk it out.
There’s a lot of new news with Kyle in the epilepsy / seizure front that I promise I’ll detail in an upcoming post.
Hopefully we are out of her office and get the king back to school by 1pm so he can enjoy the first and last hours of his school day.
Wifey will drive me back to my car in the Starbucks parking lot and I will race into Manhattan and try to make a 2:30pm meeting that I need to be at.
Wifey will hang around til 2:10pm and pick up his majesty and then take him to his after school OT/ Swim session at 3pm.
After swim they’ll get home around 4:15pm and I’ll get home from work around 6:45pm.
Dinner, tv, bed.
I’m exhausted just writing all this down.
Wish us luck.
Now let me go and finish breakfast #1. The wife will be here to pick me up any minute now.
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).
8 People Replies to “Listen to the long, whirlwind, multi doctor appointment day we have ahead of us..”
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Free daycare? No, its good to keep a routine for any child especially a special needs child.
good luck. hope it went well.
the part that most people will miss is the idea of having to rush into work for a meeting. as a fellow AD, i believe folks have no idea how hard it is to switch gears some times. hopefully you didn't hit bridge/tunnel traffic and had a productive day.
Um….rudeness. But ignoring that first comment, good luck with your crazy day!
omg! Free day care???? Amy – I totally agree – no special needs child does anonymous have – that is why she/he is anonymous! I feel the day… God bless "wifey" and "AD" I feel the love….
obviously Anonymous doesn't have a special needs child! If my kid doesn't begin and end his day at school it causes havoc for the rest of the 6 hours until bed and then Anonymous is welcome to come provide some free daycare because we're all going to be miserable! (Not really I love my kid too much to let such a moron provide childcare!)
Why take him to school for an hour and take him back around 1 only to be dismiss not soon after?? is it because it's free daycare ???