A Detour From Autism Avenue To Seizure Street :-(
December 29, 2012
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Now Reading: A Detour From Autism Avenue To Seizure Street :-(
December 29, 2012
The king had a few pretty big seizures today. His first in a while. He’s been pretty much seizure free since starting on the med Depakote after his seizure related hospital stay in mid-October.
But today he had 3 “episodes” this evening that were the complex partial seizures where he’s not there for20-30 seconds and his body looks & feels different. He hasn’t had one like these since back in May.
Thankfully our new neurologist was “on call” this weekend and she called us back right away.
Her first question?
DR: “Is he sick?”
WIFE: “Well he’s got the beginnings of a cold…”
DR: “Well I’ll bet he’s got a fever brewing. Kids with epilepsy are prone to having worse seizures during a fever.”
On her orders, we are going to increase his dosage of depakote.
And we are going to give him Advil and/or Tylenol to keep the fever away.
This all happened around 6pm. And after that we tried to keep him contained on the couch.
And just as she predicted, his cold got worse in front of our eyes. No fever yet, but everything else…
If only the kid knew how to blow his noise and cough and spit up phlegm things might be easier in his life.
So this weekend looks like it’s going to be home bound watching the king LIKE A HAWK.
This seizure/ epilepsy stuff is still relatively new to us and it can be really frightening to watch. And dangerous if he falls and hits his head. And now it sounds like every time he gets a cold we have to be prepared for a possible detour to Seizure Street.
Good times, good times. 🙁
When does school and work start again?
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).