More Seizures For The King Today…But Watch This Cute Doggy Video!
January 5, 2013
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Now Reading: More Seizures For The King Today…But Watch This Cute Doggy Video!
January 5, 2013
Friday 10:02pm — The king had a few seizures this morning….he went to school about an hour late, had a GREAT day in school, had a GREAT, pleasant, happy, seizure free afternoon & evening at home…and now he’s having some seizures in his sleep…freaky, freaky stuff…
The neurologist is going to add a new antiseizure med into the mix to go along with the depakote. I’m not sure what it is yet. We’ll get more info tomorrow.
The drs said these “breakthrough” seizures may coincide with a cold/ infection/ fever. Kyle has had a very minor cold this week…but it’s not really been that bad at all…
Many of you guys have suggested it and I’m starting to believe it that this all has to do with a growth spurt. He put on 7+ pounds in the last few months…he’s getting taller… so maybe the amount & dose of meds that worked to keep him seizure free a few weeks ago now need to be increased/ tweaked to meet his growing body.
Makes sense…but if that’s true it’s scary to think that he’ll be growing for about 9 more years…so every little growth spurt and/or every little cold is gonna come with a return of the seizures?? Fun! Fun!
Again, this is still scary uncharted territory for us and I’m sure we’ll one day get used to seeing our sons eyes roll back into his head and watch him not “be there” for 30 seconds…But for now it’s scary stuff…
But what’s good about me & wifey is that even thru all this rough stuff we can ALWAYS sleep. When the going gets tough… WE SLEEP HARD! She’s sleeping now and I’ll be going down right after i post this…
And what’s also good about wifey and me is that when he’s not having seizures…and everything is back to “normal”… even if he’s been seizure free for only 5-6 hours…we can easily forget all about them and go back to our normal wacky autism lives…
And then when the seizures come back our brains are like… “Oh shit, a seizure, let’s get ourselves back to worrying and freaking out about seizures!”
Here’s a perfect example of this…to leave things off on a positive note…
Here’s a short video from earlier tonight, around 8pm of wifey feeding Paula peanut butter out of the cap and Paula’s tongue is going to town! You can hear Kyle watching his Sesame bedtime DVD in the background and you can hear him eeeee-ing at the end…
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).