Kyle in the hospital with seizures…a Tues update
May 22, 2012
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Now Reading: Kyle in the hospital with seizures…a Tues update
May 22, 2012
If you only read my blog then this will be news to you so please check out my Facebook page for more of the backstory. For the rest of y’all here’s the latest news…
Tues 6:46am — We are still in the hospital. We finally had a 30 minute EEG yesterday afternoon.
I know you’re all thinking “why only 30 minutes?”. Well 30 minutes is all they needed.
They saw 6 seizures in that time. 5 silent seizures & 1 complex seizure.
The complex seizure was like the
big ones that I was writing about yesterday, turning head to the right side and twitching. Those last 30 seconds and happen once in awhile (he had three all day yesterday)
But the silent seizures those are just him starting off into space for a few seconds. And those seem to be happening alot. Five times during the test and now I can’t tell what’s a silent seizure and what’s Kyle’s normal looking spacey or staring at me out of the side of his mouth.
He started anti-seizure meds last night…Oxcarbazepine (brand name Trileptal) and today we go for an MRI to see if they see any reason that they came on so suddenly.
The wife arrived at 6:30pm last night so we are all back together. 🙂
And the king is handling it as best as can be imagined. Eating lots of popcorn & Cheerios while watching Seaame on the iPad all day made him happy.
Being poked and prodded for blood pressure, temperature, IVs, etc and being stuck in bed all day… he’s not too thrilled about.
Let’s hope these meds work fast cuz we are seeing alot of them and they are scary.
That is all for now. Thanks for all your prayers, thoughts and well wishes!
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).