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A Rough Week For the King & Wifey

Fri 11:57am — The king had his roughest week behaviorally in a long time this week and wifey had him by herself for most of the week this week.  He’s been extremely hyper and is getting into everything and he has to be watched and redirected every waking moment of the day. It’s a throwback to what he was like when he was 7 or 8 years old (READ) except now, at 12 he’s a lot taller and a lot stronger…

I was scheduled to have a half day of work today for the labor day weekend and was supposed to get out at about 1:30pm.  However, this morning I took the other half off to give wifey some respite.  
And already he’s done something new that he’s never done before (and not a good new thing). 
He went into the downstairs shower and turned the hot water on. If I didn’t get there the water would’ve turned scalding hot a few seconds later. 
And the timing of all this rough behavior week couldn’t be worse.
He had a rough last few months of school where he was real tough behaviorally. We kept him out of school over the summer and put him in special needs camp 3 days a week instead and he was a little better. 
And last week on vacation it was no picnic but it was even better. 
However this week has been the worst in a long time. 
So what kid can we expect next week for his first week in a new school and first week taking a bus to & from school?
He’s gonna make quite the impression next week if he’s acting like this. I wish he’d let them fall in love with the real king for a few weeks before having a bad week and lashing out.  I have a feeling that it’s gonna be rough though. 
And I hate to admit it but when he has a few bad weeks in a row wifey and I immediately start talking about whether it’s time to start tweaking some of his behavior meds. 
We don’t want to be so quick to resort to that but we’ve seen huge successes in the past with certain meds and certain tweaks.  
I’ve written often on here about his “summer of rage” in 2011 and how meds brought him out of that (READ).
So we don’t want to be so quick to tweak meds but we also don’t want to hear about a teacher or aide at his new school getting a black and blue from our 5′ 3″, 95 pound preteen. 
We are finally due to get his overnight EEG done on September 14th so we will wait for that because they will probably be tweaking his meds anyway based on that. And lots of seizure meds are also mood stabilizers so maybe he’ll reap some benefits there. 
And I know some of you will ask have you seen an increase in seizure activity this week?  Can that be attributing to the rough behaviors?
This is gonna sound crazy but I actually think it’s the opposite. I think he is better behaviorally on the days when he has seizure activity. And it’s not that he sleeps more on those seizure days. He just seems calmer…less hyper. 
The later part of this week we’ve seen no seizures, so therefore less naps, and he’s been awake and hyper and crazy for more hours throughout the day.
It’s bittersweet cuz wifey will tell me about their crazy rough day and ill say “but at least he had no seizures…”
That’s about all I’ve got to say here… This autism life ain’t no picnic boy, don’t let anyone try to fool ya.. And adding epilepsy into the mix just makes it that much harder. 
And while everyone else is looking foreword to their 3 day holiday weekend wifey and I are kinda dreading it. We’ve got 3 days at home with nothing on the agenda and that alone is scary. 
Let’s hope he has a bit of a turnaround this weekend. Just give me the king dialed up to 8 instead of the king dialed up to  11 and I’ll be happy. 


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Written by

Frank Campagna

I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).

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5 People Replies to “A Rough Week For the King & Wifey”

  1. Hugs to all and Rock the Tag Team so you can both get some rest.

  2. Ugh! So sorry to hear that AD. Labor Day Weekend is not what it used to be.

  3. Anonymous

    Make sure to adjust your water heater below 120. Keep your head up, Dad and Wifey! Good luck this weekend!

  4. Anonymous

    Puberty is the cause of serious issues for many autism families from everything I've seen and read. My 13 year old aspie has turned into an angry, foul creature I don't recognize some days. Nothing like you're describing but he's nothing like the loving child I had either. My 11 yr old autie is prepubescent and is amping up too. I feel your pain, AD, please tell Autism Mommy you're all in our prayers.

    1. Anonymous

      Once puberty hit, the doctor put my daughter on 10mg of Prozac for a few weeks before upping it to 20mg. It made a HUGE improvement.