- Autism-wandering prevention brochure
- First Responder Alert Form
- Family Wandering Emergency Plan (FWEP) Template
- Individualized Education Plan (IEP) Sample Letter
- Caregiver Check List
5) The fifth way that we can reduce the number of autistic kids drownings is the one that you probably hear about the least. Get your autistic kids swim lessons asap! These kids are drawn to water. It is a fact. Don’t let that fact scare you away from teaching your kid to swim.
My son had no fear of the water when he was younger and would just walk right in. We signed him up for special needs swim lessons at our local Y as soon as he was old enough and now I’m proud to say that I’m confident that he could tread water for HOURS if god forbid that was necessary. Get your kid swim lessons ASAP. There’s a link to that AWAARE.org site that lists all the YMCA locations in the US that offer Special Needs swim lessons. http://nationalautismassociation.org/resources/autism-safety-facts/swimming-instructions/ Sign your kid up today.
Why does everyone think the swimming lessons and tracking devices should be free for autistic kids? Those things can save any kid. How many non-autistic kids drown every year? There are plenty of parents of normal children who can't afford swimming lessons. That sort of thing is off-putting and will do nothing to gain cooperation from people outside our circle.
This article was from 2/2014
Feds Clarify How To Apply For Autism Tracking Devices – Disability Scoop
A week after announcing that the federal government will pay for tracking devices for kids with autism, officials are offering more details about how families can access the technology.
DISABILITYSCOOP.COM · 1,992 SHARES
maybe this will help someone
I use AngelSense for my seven-year-old son with autism and have for two years. I love the device and recommend it to everyone I know. As a single mom raising my boy on a limited income I can truly empathize with the need to access funding to cover the cost of AngelSense.com and other necessary tools to keep our kids safe.
I recently wrote two blog posts for AngelSense that outline how to obtain a Medicaid Waiver and also one that notes five additional funding options that would pay for AngelSense and other items our kids need, see:
5 Innovative Funding Sources for Families of Children With Special Needs – https://www.angelsense.com/blog/5-innovative-funding-sources-families-children-special-needs/
Get a Medicaid Waiver for Kids with Special Needs – https://www.angelsense.com/blog/get-a-medicaid-waiver-for-kid-with-special-needs/
https://www.firefightersvsautism.org/puzzle-alert-safety-system-pass/
Just found this and signed up…..
Many of these are covered in the Avonte's Law bill. We need to push to get the law enacted without it getting stripped down. Here is a link for the bill – https://www.congress.gov/bill/114th-congress/senate-bill/163/text
I've tried to get my son swim lessons only to be turned down because he's too hard to handle in the water and he isn't safe. so now what do I do with my son who elopes and is very attracted to water. I'm trying to teach him myself but i'm not trained and it's very slow going.
I am from Allentown, PA (also commonly know as the "Lehigh Valley") area and we are devastated. We worked as a community to search for this child as best as we could.
I am in support of a public awareness alert system but I have a question. AMBERT alerts are specifically for children that have been abducted, is that correct? If it is correct, should a completely different alert system be created with the same "powers" for alerting the public?
A Silver Alert is a public notification system in the United States to broadcast information about missing persons – especially senior citizens with Alzheimer's disease, dementia or other mental disabilities – in order to aid in their being found. so why can't they have one for our children.
I think the most important thing you can do to prevent drowning death is to be aware of sensory and seizure issues. A life jacket can be very comforting for a person with sensory issues, and it can save their lives if they end up with sensory overload or a seizure in the wrong place. My brother knew how to swim, but he was given dangerous drugs that caused seizures to control his behavior.
https://www.infantswim.com/
Is a great place to start for your child to learn how to swim the only drawback is they have ti be young we did with both our children one being on the spectrum
I believe a sixth step needs to be setting up swimming programs for our kids.
In our area trained instructors ARE offering lessons for special needs kids, but I don't know about you, I do not have $150 per private lesson.. Perhaps it should be part of their therapy regime. Swimming does have therapeutic benefits too.
Will it prevent all drowning deaths? Ofcourse not, cold water and heavy wet clothing are terribly dangerous, and panicking has drowned the most seasoned adult swimmer.. but it is something to add to the arsenal of safety measures. A child will always carry their swimming lessons with them.
I will think on this more myself, perhaps contact the YMCA locally. I've been working on teaching my eldest to swim, myself.. it's a long process for sure.
Thank you so much for writing this. It's incredibly important. Your Amber Alert idea is perfect!
I agree! Although it should have a slightly different name. Would this have to be a state by state initiative like the Silver Alerts? Also Wiki states that PA has the Missing Endangered Person Alert (MEPA) System since 2010 which for any missing person – kind of like the Silver Alert. But I don't know if it alerts the phones like the Amber Alerts do.
It took two years to find someone who could teach our son to swim. It's expensive and he's still not yet safe on water. It should be like teaching to cross a road or cycling proficiency. Here's how our son does. http://rainbowsaretoobeautiful.blogspot.com/2015/11/a-lead-pipe-ball-and-a.html
They should make swimming lessons a mandatory law requirement in special needs schools and public school special ed classes just like they do for PE classes because alot of parents can't afford swimming lessons for there beautiful special kids and also swimming is therapeutic and helps children calm down and concentrate in class.
We got my daughter a medical alert bracelet that cannot be removed with a pair of pliers. It contains her name, "Non-verbal autitstic", her date of birth, my cell phone number, her father's cell phone number, and our address.
The term "elopement" might not be as effective in a hashtag campaign as perhaps #AutismWanderer might be. Those outside the autism community may not be familiar with the concept. All these recommendations are on the money. It has to stop.
my son doesn't wander oe elope…he bolts…and runs…He is fast and he doesn't care if he runs into traffic…I hate the word wanderer…it sounds like they are just aimlessly walking around. My son is running, fast and usually going toward something…not just wandering aimlessly.
I agree. I'm a new reader of blogs from the autism community in order to learn more about autism as I have a young relative with autism. I had to stop and figure out the "elopement" concept. Thanks for your work, community–I've learned so much!
Agreed. But also would love to see some changes in the way we refer to these children. Everyone keeps saying "autistic kid"… No, they're kids with autism. Autism should not define them. This is big in the therapy world, we have been encouraged to use" person first" language.
Kathleen, there are about 800 genes already identified, where dysfunction can lead to autism. The Simons Foundation have an online database, if you are interested.
There are 80 or so treatable inborn errors of the metabolism that lead to MR/ID/autism. These are documented on a site for doctors, made by BC Children's Hospital.
http://treatable-id.org/
Mitochondrial disease is a common cause of autism and Dr Kelley at Johns Hopkins has been treating it for years.
There are tens of thousands of scientific papers that have been published on autism. A great deal is known, particularly if you have a "simple" single gene type of autism. If your autism is caused by multiple hits, it is much more complex, but there are commonly affected pathways. Again it is all in the literature. If you use "google scholar" you can find it all.
It is all there, as are treatments for specific disorders, but not all 800.
Living with kids on the spectrum does not tell you anything about their biology. For that you need the science.
Your health insurance will not cover any of this because your doctor is not a Nobel Laureate who reads thousands of papers at home. They take the simple option of not treating it. A great pity for the few where it is indeed reversible (biotinidase deficiency for example)
If you want to treat it, you have to do much of the work yourself.
There is not definitive scientific research as to the cause, exact nature, preventative measures or treatment. The only "management" prescription is generally behavioral therapy.
If it were recognized as a disease and behavior therapy a recognized treatment, please explain why my health insurance won't cover it.
I've been living with 2 kids on the spectrum for a decade now. I'm not ignorant.
My point was to point out that difference people view the disorder differently, and that may influence the language they choose.
Kathleen, autism is a disease and it can generally be managed. Just read the scientific research, it is costs you nothing and might help you a great deal.
I feel like that's a matter of preference and semantics. Fight a battle that matters. Anything that makes a real difference. My son is autistic. For me that defines his situation best. Saying he has autism sounds like it's a disease or condition which could be cured or managed. It is very much part of who he is every minute of every day. I could used the phrasing interchangeably. But again, to each their own.
I've tried swim lessons and my daughter is now terrified of water. She cries whenever we mention swimming. Unfortunately, we had to take a break but she has learned how to get out of water on her own. I'm hoping to find another swimming program that could help her.
My son is also terrified of water. He fights when it's time to shower or bathe. We've lost so much money on swimming lessons. 🙁
Autistic children should also get free swimmingessons. I've tried getting my son lessons, can't afford them.
Verizon has a GPS device that works as a cell phone and GPS device. You can track down to 3 yards on any smart phone. The device is $80 and is only $5 a month if you already have a Verizon plan.
3yards from your phone? Is it a watch style thing?
Verizon has a GPS device that works as a cell phone and GPS device. You can track down to 3 yards on any smart phone. The device is $80 and is only $5 a month if you already have a Verizon plan.
AMBER ALERT and a picture of the kid with some info about how they are – since autism spectrum is so wide would be nice. How about AMBER AUTISM WANDER ALERT. ya know and what neighborhood last spotted – would be nice. We have alarms on our house so we know if Angel gets out…its nice to have. She is not one who normally wanders but she could. I also love Angel Sence but wish it was covered by grants or organizations – many parents who need it can't afford it.