Progress = Kyle Off From School, Wife & I Not Freaking Out!
April 15, 2014
You can also filter by categoriesUncategorized
Sorry, we didn't find anything.
Now Reading: Progress = Kyle Off From School, Wife & I Not Freaking Out!
April 15, 2014
The king is off from school this week. And the wife and I are not freaking out!
That’s huge progress for us!
It’s not fun to admit it but the wife and I used to DREAD weeks off from school.
Kyle used to be a lot harder to handle. Spending the day with him was not easy. He was constantly in motion and really wasn’t as related as he is today.
This was way back before he was on meds and before wifey and I were on meds.
Our life was a lot more frantic. One of the
first things I posted on my Autism Daddy Facebook page 3 years ago was a letter wifey wrote to the Medicaid office explaining why we had an “exteme case” and it really dives in to the way Kyle used to be.
I beg you to read it before going any further with this post.
You can read it here.
We will wait for you.
(twiddling thumbs and humming)
Welcome back. Did you read it?
Did it give you a sense of how excruciating our lives were back then?
So when a week off from school would come up wifey would start asking me a few weeks out…”any chance you could take off a day or two the week he’s off”
And sometimes I’d take a day here or there but, honestly that’s the last thing I wanted to do. So sometimes I’d say I was too busy at work.
See I’m not perfect! But a day in our lives back then was a true high wire act.
I thought of another post that really spells out what our lives were like back then.
And again I’m not trying to boss you around 🙂 but I implore you to read it before we move on. You can read it here.
We will wait for you again.
(humming the Jeopardy theme song)
Welcome back. Did you read it?
So basically our days back then consisted of playing goalie. And keeping him from eating soap, or hurting himself or sometimes us.
Thinking back he was a lot less related back then. And he couldn’t sit still. The idea of him sitting on the couch and watching a 30 minute show or sitting in his playroom nook “reading” a book for 5+ minutes (the way he does now) was unheard of.
He was always on the go. Hell, we had to strap him in his seat at the table just to get him to eat.
But something’s changed over the past 3 years. It wasn’t a quick change so you barely notice it’s happening.
But over the past 3 years the king has slowed down. He’s matured. And aside from the breath holding a lot of the things I wrote about in those two old posts are either completely gone…or aren’t nearly as severe.
Basically, he can be a real fun guy to be around a lot of the time…not fun to admit, but that wasn’t always the case…
Is it maturity? Is it puberty? Did the seizures / epilepsy (which started in May 2012) help in some weird way? Is it the combo of meds he’s on?
I can’t answer any of those questions…but basically he just seems more comfortable being in his own skin. He seems happier. He communicates a bit better… he gets across his wants and needs better….he’ll take us by the hand and lead us to his wants…
It finally feels sometimes like we’re raising a happy toddler instead of playing goalie and protecting this little weird Tasmanian Devil that used to terrorize our house.
And I can’t put my finger on when exactly things took a turn for the better.
All I know is that the king is off from school this week. And as I was leaving for work yesterday wifey was getting Kyle dressed to go to the movies and then to the park/ playground afterwards… and I was jealous.
I wished I could have taken off from work to hang out with them.
And that shows huge progress…in me!
But it truly shows how easy going & fun it has been hanging with Kyle these days…
Did they have a glorious time at the movies & at the park?
Well wifey reported that it was far from perfect and was quite torturous at times…especially with the breath holding plus he tried to throw his sneaker in the pond at the park 🙂
But it was better than it was a few years back…
So all of this to say, that he is still severely, classically autistic…and while he hasn’t made much academic progress over these past few years…behaviorally he has mellowed out considerably… for whatever reason…
And again…it’s the kinda stuff that I barely noticed…until I had that “aha moment” where I realized that I’m jealous of the day that wifey & Kyle had planned.
And I’m sure the other shoe will drop soon and we’ll have another new crisis or a new behavior that rears its ugly head…and there will probably be a return of the Tasmanian Devil version of Kyle at some point…I’m not naive enough to think it won’t…but for now we’re gonna ride the hot hand and enjoy the happy almost 11 year old toddler we have right now…
Anyway… that’s all I got… Hope y’all enjoyed this one…
amzn_assoc_ad_type = “search_box”; amzn_assoc_tracking_id = “a050ef-20”; amzn_assoc_marketplace = “amazon”; amzn_assoc_region = “US”; amzn_assoc_width = “120”; amzn_assoc_height = “90”;
If you’re gonna shop Amazon anyway, can I ask that you enter Amazon by using the link above? This way I can make a little money. This blogging thing has been awesome & life changing for me… but I must admit that it’s taking up a lot more time than I ever thought… so if I can make a few bucks it’ll make it easier for me to justify….Love you all! Thanks!!
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).