None of this stuff I'm about to tell you about is life or death...but that being said, we could really use some good news this summer.
Ok, here goes
We just weren't crazy about the school that they were going to send him to in September and so we used that as an opportunity to look at other programs around our area.
Here is the school that finally our kid wouldn't be the problem child :-).
It just seems like a great school. They've got several nurses on staff, and they are not going to call us for every seizure or every bad behavior. These guys seem like they can work thru anything!
Our school district seems ok with Kyle going there as well...
However, the decision as to whether Kyle can go to that school has to be decided by some New York State Board. This has something to do with whether they will open up an additional slot for a day student or whether that slot should be held for student who's going to live at the residence.
And he's been having a lot more seizures lately... and so we had to schedule a neurologist appointment for this week, but more on that later...
And now on to the seizures...
For example, we're not going to make it get in the way of our annual upstate New York lake trip in August. That's for damn sure. We all love that and look forward to that way too much to give that up.
And then we got things on our calendar in July and August that are little things but are still things that wifey and I really look forward to and/or the king really looks forward to.
Like we have the Foo Fighters concert next week, and maybe staying at wifey's brothers house out on Long Island by the beach for a couple of days, wifey's birthday at the end of July and, she's going to see U2 in concert at the end of July
So it was after a morning visiting a school that we like, but probably won't send the king to, and it was after an afternoon of waiting in a waiting room and then seeing a neurologist and finding out we have a 3 night hospital stay coming up...
"Can we get some good news? We could really use some good news this summer. Wouldn't it be great if we heard that he got into that school today? At least we could take that off our minds and plates"
And I don't want y'all to think that this whole summer has been joyless. Wifey and I and Kyle try to make the most of our moments.
We went to the beach at the NJ Shore last week for 2 days as a family and had a real nice time. We have a day trip planned to another beach this Sunday, and we have lots of Kyle friendly activities marked on our calendars this summer.
In their alone time during the week wifey is taking Kyle to the pool, and the beach, and the movies, and the playground, and for ice cream and trying to make their weekdays together when he's not in camp as fun as possible.
And wifey and I always find our fun too. We're really enjoying "Orange is the New Black". We have some respite tonight and are going out to dinner and a movie. We're going to see the FooFighters at Citi Field next week.
Things are pretty normal around our house...
but we could still really use some good news, some good news about his school, some miraculous med that finally stops his seizures...hell I'll even take small seizures that don't make him tired and sleep for hours in the day...
anyway I've rambled enough... time for me o wrap this up so wifey and I can head out to the movies and dinner, and then probably veg on the couch for episode 9 of season 3 of Orange is the new black!
If you're gonna shop Amazon anyway, can I ask that you enter Amazon by using the search box above? This way I can make a little money. This blogging thing has been awesome & life changing for me... but I must admit that it's taking up a lot more time than I ever thought... so if I can make a few bucks it'll make it easier for me to justify....Love you all! Thanks!!