(originally written & published on September 15, 2014)
I've been meaning to write a blog post like this for a long time.
Why, you ask again?
Well there's 4 reasons why...
4 Reasons Why New Autism Parents Should NOT Read My Blog /FB Page
When your kid is first diagnosed you should read and seek out those hopeful stories. Miracles CAN happen. Kids do go from being "severe" at age 3 to mainstreamed by age 7.
There was 1 girl who was in Kyle's class when he was ages 3-4. This was an all severe, all autism classroom. This was an intense ABA school. This girl was severely affected. She was in school with my Kyle for that 1 year, and then they went off to different schools.
But fast forward 7 years and we run into her and her folks a few times a year at the pool and she is very high functioning & in a typical classroom (and she looks at Kyle with that "what is wrong with that boy?" look)
My point being low functioning, non verbal kids sometimes do grow into being high functioning verbal kids. Those stories are out there! But, unfortunately, my blog doesn't tell a story like that. My son's story is not one of those stories. My son's story is a worse case scenario story.
So, again, why would you, a new autism parent, want to read about that?
Those facts are out there...
So why would you, a new ASD parent, probably overwhelmed by the recent diagnosis of autism, want to read my blog/FB page and hear daily about my son's seizures & epilepsy? Why put yourself through that? Isn't autism enough to freak out about right now? I think so.
Besides, when it comes to the epilepsy, I got no prevention stories for you. I got no old blog posts that say do THIS and there's less of a chance that your autistic kid gets epilepsy. ("oh if only we had done that"). I got no epilepsy prevention tips or tricks for you. There's literally nothing you can do to prevent it. So new autism parents, why worry about it now? Why read about it now? Focus on autism.
It was all sunshine & rainbows and "god wouldn't give you more than you can handle" and "my 7 year old autistic kid just smeared poop on the wall, but I wouldn't change him for the world"
And slowly but surely hundreds, then thousands of moms & dads just like the wife and me came out of the shadows and told the funny, dirty underground stories about their severely autistic kids and we had our own little crazy stimmy quirky community.
And now that quirky little community is gonna hit 100,000 likes in the week or so!
New autism parents please don't read my blog. And I hope you never have to read my blog.
I hope your kid has a huge improvement with ABA or the GFCF diet and you never find yourself wanting to read a blog like mine.
If that's you after a couple of years on autism avenue then that's when I invite you to pull up a bar stool and join the autism daddy community and jump in and read this blog from cover to cover and join my FB page and laugh and bitch and complain with other parents about our kids crazy stims and bizarre sleep habits and share stories about our kids pee and poop.
Love you all!
Autism Daddy Over & Out!
-- If you're gonna shop Amazon anyway, can I ask that you enter Amazon by using the search box above or by going to http://www.amazon.com/?tag=a050ef-20 This way I can make a little money to help pay for my son's after school & weekend therapies. This blogging thing has been awesome & life changing for me... but I must admit that it's taking up a lot more time than I ever thought... so if I can make a few bucks it'll make it easier for me to justify....Love you all! Thanks!!