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Sunday Recap: I Need a Pack of Cigs & I Don't Even Smoke…

Sun 7:18pm — Wifey’s upstairs watching what she likes to call “The Oscars Pregame”. The king & I are downstairs watching some Dora.

I’m not proud of it, but I gave him his evening meds & mel a bit earlier tonight cuz I just couldn’t take it anymore.

His manic breath holding with the sounds was just out of control today…and I need to not hear it soon…so he better go to sleep soon or I may need to go out for a pack of cigarettes soon…and I don’t even smoke… 🙂

On paper, the day was
great! We had some family over this morning for bagels & buns & coffee to celebrate my birthday 🙂

And then we took Kyle to his Sunday swim lesson at the Y and he did great. He jumped in off the board twice and seemed to swim with a purpose and noticed me in the bleachers a few times.

Then in the locker room after swim he was very happy & vocal (while holding his breath & not cooperating of course). Here’s some audio of us in the locker room this afternoon…

Then we had lunch in the Y cafeteria and he did great and ate a lot…

But the breath holding was a constant throughout the day today… And I just couldn’t handle it today…and there was a lot of yelling by yours truly…

I’m writing this sitting on one of his kiddie chairs in our downstairs bathroom with the door closed so I can avoid hearing the breath holding for a few minutes…

Hopefully he goes to sleep soon and I can regroup, watch a bit of the oscars with wifey, then watch Walking Dead and call it a night…

We’re supposed to get more snow tonight… and maybe Kyle’s school will have another delay or closing tomorrow…but I’m gonna make it to work no matter what… I think I’m better off, Kyle’s better off, and wifey’s better off if I remove myself from the situation tomorrow…

Ok, that’s all I got… it’s now 7:36pm and I guess it’s time for me to leave the bathroom and see if the mel has started kicking in…

Goodnight all…

🙂

(by the way, for you newbies… mel = melatonin)

Frank Campagna

I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).

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  • We all have those days. I know I've had more then a few with my 4 yr old autistic son. Your blog has helped me Alot to realize I'm not the only one who goes through this because for a while that is exactly how it felt. Hopefully tomorrow will be a bit better.

  • Haha...I often weigh the pros and cons of where the cut off is for "how early is too early" for the little devil to go to bed! Will he wake up in the middle of the night? Will he get up at 5AM? Do I care what time he gets up if he just gets outta my hair right NOW! Yep I get it :)

  • Listening to him holding his breath was tough for me to hear, I don't know how you do it! I truly hope things get better in that department for you AD...

    Ana

  • We did Mel early tonight too. Typing this while hiding in my room for a few before I lose my own mind while hubby deals with the kids. Sometimes parents need a timeout too!

  • do you think it would make any difference if you said 'Breathe' to him and modeled a deep, slow inhalation and exhalation, maybe even putting his hand on your stomach as you breathe like this? or maybe you've totally tried that a jillion times already. just thought I'd put that out there.

  • I wonder if he was wearing a snug band or those pressure vests if that would inhibit the stomach bloating and thus breath holding?

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Frank Campagna

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