If you only read my blog then this will be news to you so please check out my Facebook page for more of the backstory. For the rest of y’all here’s the latest news…
Tues 6:46am — We are still in the hospital. We finally had a 30 minute EEG yesterday afternoon.
I know you’re all thinking “why only 30 minutes?”. Well 30 minutes is all they needed.
They saw 6 seizures in that time. 5 silent seizures & 1 complex seizure.
The complex seizure was like the
big ones that I was writing about yesterday, turning head to the right side and twitching. Those last 30 seconds and happen once in awhile (he had three all day yesterday)
But the silent seizures those are just him starting off into space for a few seconds. And those seem to be happening alot. Five times during the test and now I can’t tell what’s a silent seizure and what’s Kyle’s normal looking spacey or staring at me out of the side of his mouth.
He started anti-seizure meds last night…Oxcarbazepine (brand name Trileptal) and today we go for an MRI to see if they see any reason that they came on so suddenly.
The wife arrived at 6:30pm last night so we are all back together. 🙂
And the king is handling it as best as can be imagined. Eating lots of popcorn & Cheerios while watching Seaame on the iPad all day made him happy.
Being poked and prodded for blood pressure, temperature, IVs, etc and being stuck in bed all day… he’s not too thrilled about.
Let’s hope these meds work fast cuz we are seeing alot of them and they are scary.
That is all for now. Thanks for all your prayers, thoughts and well wishes!
Prologue by Autism Daddy: Howdy folks! Long time no blog! I hope y'all are well! …
Howdy folks! As many of you know I work at Sesame Street, and was proud…
Intro: Jim lives in Pittsburgh where he works as a Project Manager by day…
GUEST POST Almost 10 years ago, my then 2 -year old son, Devin, was…
GUEST POST -Ellie Whetzel is a Wife, Mom, and blogger who writes about the ups,…
I've taken my son to Sesame Place many times! He's 14 years old, but he'll…
View Comments
AD, thank you for the update. I am glad autism mommy is with you now, and new meds are on board. Thinking good thoughts for the MRI today.
thanks for the update ! glad he is doing some what better I am soo scare to face this situation with my son!
I am glad the EEG went well and they were able to see what was going on. My son has the exact same seizures..he'll get the staring seizures..like someone pushed his pause button..and the complex one's. He takes the depakote sprinkles. I have to hollow out his chicken nugget and slip the sprinkles in there. They refuse to give him the liquid. They say it's not long acting. Prayers to the "King" and you and your wife. The depakote works pretty well. Just hate that I had to add yet another serious medicine to his list of things to take.
All my thoughts and prayers to you. He's a lucky little fella to have parents who love and care for him so much XXX
Big hugs to you all. you're in our prayers.
Hang in there... And thanks for keeping us posted. Sending prayers your way.
Praying for yall
Lots of love to you all...
You & your family are in my prayers.
good luck! so glad you took him in! prayers are with you all! remember special kiddos need special parents!