The king had a few pretty big seizures today. His first in a while. He’s been pretty much seizure free since starting on the med Depakote after his seizure related hospital stay in mid-October.
But today he had 3 “episodes” this evening that were the complex partial seizures where he’s not there for20-30 seconds and his body looks & feels different. He hasn’t had one like these since back in May.
Thankfully our new neurologist was “on call” this weekend and she called us back right away.
Her first question?
DR: “Is he sick?”
WIFE: “Well he’s got the beginnings of a cold…”
DR: “Well I’ll bet he’s got a fever brewing. Kids with epilepsy are prone to having worse seizures during a fever.”
On her orders, we are going to increase his dosage of depakote.
And we are going to give him Advil and/or Tylenol to keep the fever away.
This all happened around 6pm. And after that we tried to keep him contained on the couch.
And just as she predicted, his cold got worse in front of our eyes. No fever yet, but everything else…
If only the kid knew how to blow his noise and cough and spit up phlegm things might be easier in his life.
So this weekend looks like it’s going to be home bound watching the king LIKE A HAWK.
This seizure/ epilepsy stuff is still relatively new to us and it can be really frightening to watch. And dangerous if he falls and hits his head. And now it sounds like every time he gets a cold we have to be prepared for a possible detour to Seizure Street.
Good times, good times. 🙁
When does school and work start again?
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Thinking of you <3 sending good thoughts to both you & your boy
LIKE A HAWK - right!? my fiance has a condition where he passes out and just falls straight to the ground with not enough warning to help himself do so safely. SUCKS. I hope the King recovers quickly! You're in my thoughts.
I have struggled with the same as your fiance. Does he know what's causing it for him? I am still in the middle of trying to figure it all out with my doctors on mine.
poor little guy and poor parents...you're in my thoughts and prayers...Beth Bollig
They are starting to look closely at my oldest for seizures. I am not sure what to think anymore. They have been on both sides of the fence on whether or not they think he has them and they keep going back and forth. I've just found out this morning that he's been scheduled for a neurologist this coming March after being told rather sharply just before Christmas there was nothing to worry about. They have me all so confused.
Praying for you, your wife, and Kyle. ((hugs))
I know these days. Our son treats us like we are stalkers when we are seizure watch. He leads us to another room, then shuts the door, or hands us our car keys and waves goodbye. Hang in there and may your watchful eye be welcome:)
Hugs & prayers for you, King, & the Mrs. I praise God my kids haven't developed epilepsy (that we've noticed). I pray they never do. It's a hard road & I'm thinking about y'all.
I always wished my ASD grandson could blow his nose. He just seemed miserable...He has now learned how and he will not wait for a tissue...So I am having to modify what I wished for to include "into a Kleenex, shirt sleeve, something except hanging down his face till I can get to him..." Oh, how I love my boy...
Very sorry to hear. My prayers are with you guys.
My son has his "big" seizures in his sleep. The only way we knew he was having them was several years ago, he was sick so needed some momma love and he was sleeping with me. He had 2 that night and after an MRI was diagnosed with epilepsy. He gets "blinking seizures" during growth spurts. We have been told that the type of epilepsy he has will increase in activity when puberty hits. So sorry you guys are having to deal with this!
Wow I started 9 years ago with starabsent kind n that caused me to b back in a diaper r pullup N 4 years ago ing type seizures absent kind 3-4 years ago had a severe grand mall lasted 10 min unconsciyos for,15+, min