Mon 7:13pm — We had the king’s IEP meeting today.
After 10+ years of living on Autism Avenue these meetings still take a lot out of wifey and me.
It’s never easy to hear that your kid is the problem child in a classroom full of kids on the non verbal / low end of the spectrum, but that’s exactly what we heard today…
His majesty has truly been a terror at school these past 3-4 months with lots of PBs (problem behaviors) including hitting, spitting, flicking his saliva at folks, and pulling off his pants.
Basically on the days when he doesn’t have seizures and naps he’s the worst behaved.
The school is trying to break thru the behaviors as best they can but they’re not having much success.
This might not be the right school for him anymore and he’s kinda aging out of the school anyway, but we don’t seem to have a lot of other options.
We’ll look at other schools and programs this month and throughout the summer, but we kinda already know what’s out there and none of them are truly a good fit for Kyle.
I know he might not be able to help some (most?) of the PBs but he’s really make things hard on himself.
All I can say without a doubt is that…AUTISM SUCKS!!!
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I have a friend who works at Devereux - apparently all the 12 year olds in residence want to be naked. It is a pretty uncomfortable problem for sure.
I think he needs a behavioral assessment by a non district behavior analyst. He's not acting out for nothing. There is some basis for what is going on, and the school staff isn't picking up on it.
I hope someone figures it out soon. Hugz for all of you. <3
I agree, something is being missed. Our children are so sensitive to change, they tend to act out more. I hope they were able to pin point when the change started. Prayers and Hugz.
I agree too, when my ASD son's schedule changes even by a minute, he bedwets until he gets used to the new schedule. There might be more going on there.
Pulled ours out of public school. Connections Academy, and they work with us from the bottom to the top. We are wayyyyyy poorer than before, but the stress of public school has ceased. Finding out the majority of stress/anxiety/behaviors was just that. It took about 3 months but his life is much more pleasant and he is way more comfortable in his own body. Not even on meds anymore. I realize the King is on the low end of the spectrum, but the stressers sound so similar. <3 to you all
He's trying to tell them he hates the room. I realize I don't know him or anything, and our boys are different. But my son was insanely bad, the worst kid in the room. Changed teachers, changed classmates, changed attitude. I know at least one of the aides in the room was a huge stress inducer, not sure which kids were, but we just swapped them all out. He was a completely different kid.
Autism DOES suck, but this happens to the typical kids too. Personalities don't mesh with everyone, and one teacher can royally screw up a kid. Best of luck! Hope things work out and you find what he needs.
It's been awhile since I've been able to check out your blog. I'm very sorry to read you all are having such hard times. I absolutely agree with the comment above. Autism can suck, but this happens to typical kids too. You and your wife sound like amazing parents. Your little guy is lucky to have you. :) I've been dealing with a lot of school issues with my 7 year old. He's been even sent home a few times... So frustrating! Autism families need to stick together. Sending you all positive thoughts!! I hope things get better soon. *hugs*
Just send him to Manhattan and put him in the Rebecca School!
Come to New Jersey....such wonderful programs, specialists, schools (pubic and private), therapists out here. And we haven't paid a dime for any of it. Except in taxes. Lots and lots of taxes.
I know....probably didn't help to hear: Just move somewhere where the services are better. IF there is a way you can prove that the school system cannot give The King what he needs, the district should pay for him to go to private school for kids with autism...right?
Remember FERPA, hire a lawyer and research what's out there. hugs
I am so sorry to hear about Kyle`s struggles. As a parent of a very aggressive child, I know how terrible this feels. I completely agree with having a functional behavioral analysis done, but I am wondering if it is not the hormones kicking in, as he is now a teenager. Just a thought...
Another possibility would be a growth spurt with a need for medications dose adjustments? Hugs to you. I know how badly this sucks.