Thur 7:48pm — I know after all of those crazy hospital stories I owe you guys an update on the results of the king’s EEG.
However, there’s not really much to tell.
He had six decent size seizures during the second night while hooked up to the EEG!
Boo for seizures! Yay for the fact that they caught them on the EEG!
They all came from the right side of his brain which gave the doctors a better idea of which medicines to try next.
So he’s going down on one anti-seizure med and up on a new one over the next month and then we head back to the neurologist’s office.
I’m not even going to mention the names of the meds because I know I’ll get a bunch of horror stories in the comments with whatever med I mention.
So anyway last night he got his first dose of the new med and, of course he has a really rough first day back to school.
Lots of hitting and a rather bizarre pee-pee accident / incident.
But no seizures and no naps!
Did the new med cause the bad behavior? Who the F knows!
Is the new med the reason he had no seizures or naps today? Who the F knows!
Is he having any side effects or feeling weird on the new med? Who the F knows! If only he could tell us how he’s feeling!
What I do know and what I can tell you is that non-verbal autism mixed with severe intractable epilepsy really truly sucks major balls!!
And I’m POSITIVE that if the king could talk he’d say the same thing…
THE END. That’s all I got tonight.
I’m heading to sleep as soon as I get his majesty to sleep.
I still need to catch up on my sleep after 2 days with almost none.
I was literally falling asleep at wheel while in traffic on the way to work this morning.
Goodnight all!
zzzzzzzz
View Comments
Hope you'll and rock star mommy have brighter days ahead.
Good luck and loving thoughts for the future <3
So sorry all this time and little result. I get it and will keep you all in my thoughts.
not alone....totally agree intractable epilepsy and autism does suck big time...have a goodnight...tomorrow is another day
Even without any epilepsy my son had a horrible day with behavior problems, attitude, pee accident, and a tantrum that lasted for an hour because I don't F-ing know. He is verbal but was reaching for made up excuses for what he wanted/didn't want. Good luck with your king and here is hoping for a better tomorrow
I feel ya
sure does....i feel ya!
i really wish people would take me seriously and agree to let me be tested for seizures. i just get ignored or told to drink more water. *sigh*
We are going through something similar with new meds for our son. It's really hard when they can't tell or show you how they are feeling. It is frustrating for everyone. I hope you all get some sleep. Good luck on the new meds.
We are going through something similar with new meds for our son. It's really hard when they can't tell or show you how they are feeling. It is frustrating for everyone. I hope you all get some sleep. Good luck on the new meds.