(originally written & published on January 30, 2012 when my son was 9 years old)
As you all know I often rant & complain about my fickle mistress Autism and how she gets in the way of my son making any significant progress. (yes Autism is a she 🙂 If you’ve been reading this blog for a while you’ll know that Autism and I don’t get along too well. I don’t like her too much and she doesn’t like me too much. Autism and I fight a lot and she wins a lot of those fights. I win a few once in a while, like potty training. But every once in a while we need to have a truce and evaluate things and try to look on the bright side so we don’t kill each other… 🙂
Hence today’s list…
My Top 11 Benefits of Having a Kid with Classic Non-Verbal Autism
BENEFIT #1
I GET GREAT PARKING SPACES…
I’ve written about this before but in case you STILL haven’t heard, you can get a handicap parking placard if your kid has severe autism and has no sense of danger and is in danger of running into traffic. For more info about this click HERE.
Anyway, with your handicap placard you great spots at movie theaters, supermarkets, amusement parks, Home Depot… as long as you have your kid with autism with you. 🙂
Woo-hoo! Yay autism!
BENEFIT #2
I GET TO CUT TO THE FRONT OF THE LINE AT AMUSEMENT PARKS…
Most amusement parks give kids with disabilities a pass or wrist band that lets you skip to the front of the line. We’ve successfully done it and Sesame Place and several Six Flags parks and I’ve heard amazing stories of asd families being treated extra special, like kings at Disney World and other Orlando parks. At the parks we went to we were told to wait by the exit to the ride and alert an attendant and they would let us right on. Did we get some dirty looks? Yes. Did I care? No. And some asd parents will say it’s important to teach our kids that they have to wait like everyone else. I say, life is hard enough, take the perks when you get them…
BENEFIT #3
I APPRECIATE THE SIMPLE THINGS IN LIFE…
I doubt any of my friends with typical kids appreciate sleep as much as the wife and I do. I also appreciate having a DVR full of my favorite shows ready for me & the Mrs when we finally get Kyle to sleep each night. And we appreciate a night out more than most parents. Even something as a good burger cooked medium well is a thing of beauty…
BENEFIT #4
WE’VE GOT A BUILT IN EXCUSE TO BE LATE…
Ok sometimes my son Kyle is the reason we are late to places due to any number of things (meltdown, feeding issues, etc)….but sometimes mommy and daddy are just spazzes and lose track of time.
And when we show up late somewhere, especially a family function, and folks will say “what happened? Why so late?” We will throw Kyle under the bus and whisper “somebody had a rough morning…” and motion towards Kyle. Everybody nods understandingly… NUFF SAID…CASE CLOSED 🙂
BENEFIT #5
I TAKE NOTHING FOR GRANTED…
I really try to notice & appreciate the littlest teeny tiniest milestones in my son’s life. If you’ve read my Autism Daddy Facebook Page for a while you’ve read me revel in the fact that my son for the first time tracked the dog with his eyes while she ran around the backyard. Or celebrated my son getting potty trained (for the 3rd time). Or playing with the Ipad appropriately by himself for 30 minutes straight. Or trying a new food with a different texture. These are miniscule milestones in a typical parent’s life and in the grand scheme of things may be small milestones in Kyle’s life, but they are worth noticing & celebrating…
BENEFIT #6
WE GET SPECIAL PRIVILEGES AT THE DOCTOR’S OFFICE
When we are going to a new doctor who doesn’t know us and Kyle, the wife will call in advance and tell them about Kyle and how hard it is for him to wait a long time. She will also ask that any forms we are supposed to fill out get emailed or faxed to us in advance so we are not in the waiting room trying to fill out forms. When we get to the appointment, if both mom & dad are there one of us will wait in the waiting room while the other hangs with Kyle and will call the other when it’s our turn. When the wife has gone solo she has checked in and if there is a wait she has asked the receptionist to call her cell phone when it’s Kyle’s turn and then they wait out in the minivan watching dvd’s…
(we only do this with “normal” doctors. If it’s a doctor who sees lots of special needs kids, we will wait our turn and take our lumps…)
BENEFIT #7
SOME TRULY AMAZING PEOPLE ENTER YOUR LIFE
When you enter this autism world you meet the most AMAZING people. Of course we’ve become good friends with a lot of the autism moms & dads in our lives, and yes they are amazing. But even more amazing are the people who CHOOSE to work with our asd kids. I didn’t CHOOSE to have a kid with autism. It just happened and I’m dealing with it as best I can. But the people that care for our son every day? The teachers, therapists, aides… Most of them CHOSE to work with kids with Autism. For most of them this is what they wanted to do with their lives. And to me that BLOWS MY MIND. I mean y’all know what our kids are like. Most of these people should be up for SAINTHOOD! And then I run into a few autism moms that change careers after their kid’s diagnosis to become autism teachers or social workers working with asd families. To me they are the most AMAZING of all! To have autism at home and then go to work and deal with more autism? How? God bless you!
BENEFIT #8
I DON’T HAVE TO BUY THE LATEST TOY / VIDEO GAME…
My kid isn’t superficial. He doesn’t whine that he doesn’t have the latest Wii system. He doesn’t sit on Santa’s lap at Christmas time with a laundry list of things he has to have. He is extremely happy with the same books & toys he’s had for years. He rips / destroys his copy of ”Brown Bear, Brown Bear” and he gets a new one as a gift from an old friend. His toddler cash register gets lost and his Grandma buys him a new one. In fact, the wife will rotate old toys in & out of his room and he is thrilled when an old favorite is brought back into the mix. (Toddler toys are still HUGE in my house.)
BENEFIT #9
I’VE BECOME A BETTER MAN…
I was 33 when my wife gave birth to Kyle but I feel like I’ve grown up and matured so much in these last 8 years. I’ve learned more about autism then I ever thought possible. I’ve learned more about the law then I ever thought possible. I learned more about schools and districts and bureaucratic red tape then I ever thought possible. I learned how to stand up & fight & advocate for myself and my kid. I’ve done more adult/ responsible things that I never would’ve done (like completed my will). I evaluated myself and realized that I needed some help to be a better father & husband. All in all you could say that Autism help make me a better man…
BENEFIT #10
WE CAN CURSE LIKE SAILORS…
I’ve written this before. The wife and I both have potty mouths. We curse a lot and we have a very bawdy sense of humor. And yes, we talk like that in front of Kyle sometimes. He is non-verbal, but the wife and I would be thrilled if his first words were “Will you motherf&$kers shut the f&$k up?”
BENEFIT #11
I’M REACHING PEOPLE IN A WAY I NEVER THOUGHT POSSIBLE…
I would never have had a Facebook Page or written a blog if my son didn’t have autism. And I know I’ve only been at this “writing” thing since April 2011, but I feel like I’ve gotten so much out of it. I’ve learned a lot about myself. I’ve gotten some great advice to help my son. And from your feedback I’m feeling like I’m helping some of you…which is still MIND BLOWING. I don’t know where this Facebooking and Blogging is heading in the future, but I’m sucked in and along for the ride. Hook, line and sinker…
And I’ve got my fickle mistress Autism to thank for all of this… That bitch! 🙂
THE END
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View Comments
I have a 6 year old who has never asked "why", not even once.
Compared to the other two, that's a BLESSING not a CURSE.
Sure, I'd love to hear him ask a meaningful "why", but not the endless "why" question that goes on forever with no logical end.
I f&@$ing love this!! Haha...'autism is a she'! Ha. She is a moody son of a b*#ch:) lol
Kate Wells
I think your right ,my Colby repeats me sometime,and can say son of a bitch real well ,and shit ,his parapro at school(that has a son with autism 20)told me that used the words the right way one day when told to put his things away he look at her and said shit shit shit ...I lmao and so did she. I want thank you for sharing these things with us.It helps me alot. your a great Dad...
Hi AD! 3kidsmom here. My 4 y/o is learning to talk, so imagine our joy when he picked up a piece of paper and said "what the hell?". My first thought was "cool, speech therapy is working"! I made sure to let the ST know of our progress, too. All success is celebrated!
I love number 10...sounds so much like my daughter and son-in-law and as often as I used to tell her to watch her mouth I now hope for the day my grandson, Noah or Aiden, blurts out a sentence, even if it is, "Gramma, get the f$@@ outta here!" One my favorite things is that Noah is always so excited to see me and he still at 5 years old puts his arms out for me to pick him up and hold him and if I spend the night he is just as excited to see me the next day! Aiden will listen to me sing and then clap...nobody without autism would ever clap at my singing...lol.
I love number ten as well. One time during ABA therapy Nick grabbed a toy that did not work. He banged it against the wall three times saying "fuck! fuck! fuck!" We were ecstatic because he used words appropriately!! lol. We were also laughing our butts off :)
wow, AD, I am sitting here laughing my butt off once again....I do have a bad mouth but I've toned it way down the past year. I especially love #4 as that is pretty much our excuse for everything. but a large majority of the time it is the truth. she stalls and has meltdowns then yells later and gets mad at me when we don't get to where we were supposed to go....aaahh, life....
#8? yeah...we just broke down and bought a Wii as she needs the movement :) but toddler toys are popular with her too. I just thought it was her. she had the entire line of little people toys by 3 and never touched them so we gave them away. now that she's 8, oh yeah, all the time at my mom's who has them for my niece.
you help me tremendously in the fact that it helps to read others' struggles. so, thank you! and Kate is right.... she is VERY moody indeed, lol!
dear Autism dad, my name is Delfina, and I want to tell you that knowing that Autism is a she really makes sence... my son is about to be thirteen I can relate to all the things you wrote, the bitch (Autism) has taught me patience.... nothing like having a son that can barely speak, wears a men's 34 pant,that is bigger than u and has a mustashe I will definatly be friending you and will be here if you ever have any questions about the man child that will invade your home SOON...signing this anonymous because i am at work and the computer here sucks...
I f&cking love your list.
thanks for being so honest. i plan on sharing this with my hubby so that he can see that it is ok and life does go on. Rena