Categories: Uncategorized

10 Things I’ll Never Try To Teach My Son w/ Autism

(originally written & published on September 23, 2014)

This is meant to be a funny post. So if you were looking for profound things like “I’ll never teach my autistic son to lie” or something noble like that then maybe isn’t the post for you. Although if I can’t think of enough I may just throw in one of those profound ones just to round it up to ten since that’s what I promised.

But for the most part these are a bunch of things that my 11 year old severely autistic, non verbal son doesn’t do now.

And if he hasn’t grasped by age 11 maybe that is a blessing in disguise…

So here goes…

I Will Never Try To Teach My Autistic Son …

1) How to Unlock Doors
My son doesn’t currently have the fine motor skills to unlock a door and he’s never shown any interest anyway.  Yes he is working of fine motor skills all the time.  But unlocking doors?  Why should I teach him that?  Way too many autistic kids are bolters & run away at the first chance they get. And many are Houdini’s who can break out even with multiple locks in play. Now my kid is not a bolter…yet. So why introduce the idea of unlocking doors to him… yet…  I know what you’re thinking. What if there’s an emergency. Well we are always with him. We’ll unlock the door.

2)  How to Get Into Our Basement
Because he can’t unlock doors my son has never once set foot in our basement. And that’s a good thing because it’s not really a basement it’s more like a cellar with way too many dangerous things down there. Yes our washer & dryer are down there and it would be nice to teach him to help with that someday. Maybe that someday will be when I find the money to turn it into a sensory gym for him (or a man cave for me)…  But for right now there’s a magic door across from the downstairs bathroom that he’s never been behind.

3) That His Mom & Dad Aren’t Cool
At the age of 11 is when most kids start rolling their eyes at their nerdy parents, right?.  But I think he still thinks his mom & dad are cool.  And I think we are still cool because he is somehow keeping us young.  I’ve said before & I’ll say again that for better or worse we’ve been kinda living like the movie “Groundhog Day” and raising a toddler for 9 years now.  And when he was actually a toddler we were in our early thirties and we were cool.  And that is where we are gonna stay.  If he is gonna stay a toddler then we are gonna stay in our early 30s.  And we’re gonna eat dinner on the couch in front of the tv, and go out as often as possible, and try to live life to the fullest!

4) How to Cut With a Knife
Yeah we’re working on fine motor skills and we’re working on using a fork appropriately but he hasn’t come close to graduating to a knife yet… And I’m not rushing it.  🙂  He can do enough damage with a fork. During his aggressive days, his summer of rage in 2011 he did this to me with a fork.


He’s currently not very aggressive but we know that it could return at any time so why give him a sharper weapon?  LOL 🙂

5)  What Santa Claus or the Easter Bunny Are
Ok, so he may be too old for it now anyway.  But he never really got it.  And in the early days that made wifey and me sad.  But if he never really got it, what are you gonna do?  If he never really got it, then that probably means he’s never gonna care about materialistic things.  And I’ve written before that he’s still thrilled to get the same 5-10 toddler books over and over and over.  And he can take joy in playing with a toy in the packaging for months… and then when the toy is out of the packaging he is thrilled and treats it as if it’s a new toy!  🙂

6) How to Make the Volume Louder on the iPad
Ok so maybe I’m kinda kidding about this one. We are THRILLED that even with his limited fine motor skills he has had success navigating the iPad and opening up apps that he wants and choosing videos he wants, but he currently doesn’t know how (or doesn’t care how?) to make the iPad volume higher (or lower, but that never really comes into play now does it). I’ve showed him quite a few times, but for now he’s content to hand it to me and mand for me to make it louder. And if I say no for whatever reason he’s somewhat ok with it.  So for now I’m gonna leave it be.

7) How to Work the TV Remote
As with the iPad, the same is true for the tv remote. The buttons on these remotes are smaller & smaller and he doesn’t have the fine motor to navigate it properly nor has he shown any interest.


In fact I think only recently has he made the connection that the remote controls the tv. So every once in a while when the tv is off or when we are watching one of our shows he will hand one of us the remote which is a huge step for him and something we are proud of. But his shows are almost always on, so I’m not sure I want him that adept at working the remote control anyway, especially when the Yankees are on…

8) What Nickelodeon and the Disney Channel Are
We are a simple family.  We are a Sesame Street, Dora, Jake’s Big Music Show, Laurie Berkner family.  We’ve had a DVR from before he was born.  We DVR all of his shows.  So he doesn’t know any of that other Nickelodeon or Disney Channel crap.  And for that I am glad.  I know way too many typical kids his age who are addicted to the Disney tween programming.  I will not let that happen to my son!  If he ever moves away from toddler programming I will graduate him directly to adult programming, starting with the classics like Seinfeld & 30 Rock!  🙂

9) That He Can Easily Climb Over These Baby Gates

          

We still have a safety gate / baby gate at the top & bottom of our stair case and we have one on the door frame going into our home office.  And no, the king doesn’t yet have the fine motor skill to open either of these gates… but he is now way tall enough that he could easily climb over them.  He’s climbed over the home office gate a few times if he saw a toy or something he really wanted, but thankfully never the staircase gates.  He some how still respects the gates and I don’t see any reason ever to clue him in to the fact that he’s tall enough to climb over.  The day he figures that out I will be extremely proud & extremely scared… 🙂

10) How To Lie

You knew I had to add this one didn’t you…  🙂
—————————————–

UPDATED 10/23/14

THIS ONE GOES TO 11!

Soon after this blog post came out, wifey helped me think of an 11th thing!

11) How To Dive Into the Pool
Many of you know that the king is a great swimmer.  Or better yet, a great treader.  He can tread water for hours.  Anyway, a couple of years ago one of his swim instructors tried to teach him to dive into the pool, but it wasn’t going very well and they put it aside for awhile… But now we are at a point where we don’t want him to learn how to dive because we are not sure that he’ll be able to differentiate between deep water and shallow water.  And if he dives head first into shallow water… well that wouldn’t be good at all.  So, for now, I’m probably for ever, diving is off the table.  The Special Olympics allows jumping in, right?

🙂

 

 

Frank Campagna

I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).

View Comments

  • Great list! We're not teaching my daughter most of these things either. Although she has learned how to use the remote (mostly) and it has enhanced her video-watching enjoyment as she can pause and rewind and fast-forward at will. She enjoys watching her videos "fast"! ��

  • I enjoyed reading these! They gave me chuckles and they are all excellent points! And I can only imagine that each family of a child with autism has their very own unique list of 9 things. It all depends on their family! I completely agree with iPad volume! I have 3 and 4 year olds in my classroom who I WISH didn't know how to control this! Always enjoy your posts!!

    Erin
    Creating & Teaching

  • I think this list is a great list, and I wish my mod/severe ASD daughter didn't know how to unlock the doors.... She is a bolter and I sleep lightly every night.... I actually agree with all 9 of your examples!! Great work yet again... although I am pretty sure that great work is the only kind you are capable of! Thanks for sharing!!

    • I had a friend that had this issue... they put inexpensive 'slide' locks on doors... too high for their son to reach (I'm not sure he ever realized they were there). After a while... he stopped trying to unlock the regular lock. My son (severe ASD) hasn't figured out locks yet... and we try not to let him see us unlock the doors... not a skill we want him to know!!

  • I once got "yelled at" by a parent for teaching her kid to open screw top jars. What did I know? I was a young teacher, and so excited to be building fine motor skills. She said "sometimes the only way we can keep things out of his hands is by using a cleaned out peanut butter jar (or something like it)"

  • Under Medicaid waiver NYC if you own your house your entitled to one time home modification you can always use that money to make your basement into sensory gym for the king.

  • I love this list! #5 and #8 are the same for us. You are very fortunate that he doesn't unlock doors - my Houdini learned how to unlock and undo all the babyproofing on the first try before he was a year old...and he was a runner, too. He'd wait until I was sitting on the toilet, then he'd run out naked into the snow! This lifestyle is full of wild thrills.

  • Hopefully, this doesn't post twice!!!! Love your posts AD. My son thinks it is hilarious if I fast forward or rewind his dvds....=) Silly boy!!!

  • 10. How to take off her seatbelt in the car
    11. Wish I never taught her to take off her hat (winter or for sun)

  • The list is awesome I really like it about the gates wat are the ones u using for the king my lil girl is 4 she already knows how to push our gate out or climb over it she won't stay in her room during the day not even for n hour on the doors I hit childproof locks she tries to open them thankgod she can't yet so really I'm over my head here I don know wat baby gates well b safe for her a lil advice please thankyou

    • Try the really old ones that pull out like an accordion and have this spring latch that even m my husband has trouble undoing. I got it on Amazon

    • Our gates are metal... ordered from amazon. I think they are meant for large dogs. They are 3 ft... and the latch requires you to press a button on the top and bottom at the same time to open it. It took my DH & I a few minutes (and me looking at the instructions) to figure out how to open it!! They were a pain to install (attached to the walls)... but, we figured our son will probably need them for a long time... so it was worth the time and money.

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Frank Campagna

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