A quick post about how good things are on my Autism Avenue right now…
April 4, 2012
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Now Reading: A quick post about how good things are on my Autism Avenue right now…
April 4, 2012
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I’ve written recently on my Autism Daddy Facebook Page that I didn’t want to jinx anything. Kyle has been AMAZING behaviorally recently. Really happy, really related, following directions better, etc, etc, etc. The list of positive things could go on & on. All really small things that if you know Kyle you’d know how HUGE they are.
But I’ll admit that we’ve been coasting pretty darn good these past few weeks and really been enjoying him.
And yesterday I was waiting at the pharmacy for a prescription to be filled and it was taking a little longer than I thought. And then it dawned on me. I’m not stressed right now.
When things are going bad, or when we are in a rough patch with Kyle something as simple as a prescription taking longer than normal can send my brain into a tizzy. “I wonder if I’m gonna get a text from the wife. I wonder what’s going on at home. Should I text her and let her know this is gonna take a while? I wonder what kind of disaster I’m gonna walk in to when I get home? Maybe I’ll take the LONG way home.”
Those are the kinds of things that would go thru my head during the rough patches. And yesterday? I was just sitting in the pharmacy reading espn.com without a care in the world.
And when I got home everything was ok.
I mean we still have some issues with Kyle.
He has a few pee-pee accidents a week and they are a doozy cuz his bladder is getting bigger so when he goes it gets everywhere.
He still doesn’t eat well. And if you’ve read this page for a while you know that’s a constant concern cuz he’s got a history of losing weight. (you can read more about his weight issues HERE).
He’s still holding his breath CONSTANTLY. He’s been going to see a behavior therapist for MONTHS about this (thank god for the medicaid waiver!) and they are slowly working up a plan of attack. But Kyle’s breath holding case is very unique. Sometimes there’s 3 specialists in there with him. I think they may be able to write a book when they are done with him! (you can read more about his breath holding issues HERE & HERE).
He attacks the elderly. 🙂 He cannot be around my in-laws without trying to bite my father in-laws forehead or pulling my mother-in-laws hair. He also likes to rip off jewelry & glasses off your head. But mostly with his grandparents. My wife likes to say that “he loves the crap out of them”
At other people’s houses he is much less related and really zones out sometimes. We’ll be telling relatives about how great Kyle’s been and then they’ll finally see him and he’ll be wandering around their house, holding his breath A LOT, and oblivious to most of what is going on.
But besides those 5 issues, all is right in our world right now. He is sleeping well. He is laughing. He is happy. His receptive language seems to be a bit better. He has moments during the day when he seeks our attention…takes us by the hand and plops us on the couch next to him, as if to say “watch tv with me dad”… He’s engaging in peek-a-boo games sometimes. Basically, when he is in our house, in familiar surroundings, he has been a PLEASURE!
And I hope it continues.
That’s it… The end. This is kinda a bizarre post. I just wanted to tell the pharmacy story and I wrote all this crap.
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).