It's Been a Rough Week So Far…A Tues Update From AD
April 22, 2014
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Now Reading: It's Been a Rough Week So Far…A Tues Update From AD
April 22, 2014
Tues 7:24pm — It’s been a rough start to the week for the king and therefore for his subjects.
Yesterday was his first day back to school after spring break and he did a lot of hitting of others (adults, not kids).
Today he hit the trifecta. The note in his communication notebook said he hit even more today, plus he had two mini seizures, and to top it off he also had a pee-pee accident.
Needless to say wifey excused herself shortly after I got home from work…and went upstairs to watch “Parks & Recreation” Season 3 in bed on Netflix so she doesn’t hear all the breath holding & general craziness going on down here.
Melatonin has already been administered and I’m just waiting for it to kick in.
Looking back Kyle was going thru a stretch almost exactly like this a month or so back…before he got sick.
And getting sick (flu/infection?) mellowed him out big time. And I think having antibiotics in his system for 10 days mellowed him out AND helped him have less seizures.
Yes I googled it. And of course it’s possible…in some people. (And in others it could have the opposite effect and bring on more seizures)
Anyway, thinking back, for almost 5 weeks we had delightful, happy, related, calm Kyle.
But now he is totally “healthy” and unfortunately totally back to his pre-sickness norm from late Feb / early March …of aggression, crazy breath holding, and too many little seizures.
I said to wifey that there’s noting better than Kyle with a
mild, low grade fever.
But we can’t pull that off…so if this lasts much longer we’ll be back visiting all his docs seeing what’s the next course of action.
Go up on his VNS device?
Go down or up on one of his seizure meds?
Or try something else?
Anyways that’s my Tuesday night update.
Hopefully this is just a blip on the radar and only lasts a couple of days and I’ll have a more positive / happier Thursday update for y’all…but I’m not betting on it…I’m a realist and I think the other shoe has officially dropped…
It’s now 7:42pm and Kyle has the blanket over his head while he watches his bedtime videos.
The melatonin gods seem to be working their magic tonight.
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).