Day 6 after VNS Surgery… a much more "typical" day
August 27, 2013
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Now Reading: Day 6 after VNS Surgery… a much more "typical" day
August 27, 2013
What a much more “typical” day in the ol’ AD household.
It’s Monday at 8:01pm and I’m sitting in the dark in the kings bedroom writing this on my phone. I just brought him up to bed.
It is 6 days removed from his vns surgery implantation and things are slowly starting to get back to “normal” around here (whatever that means).
The wife reported that he napped a lot less today (only one 45 minute around 11am). And was a lot more “with it”.
They went for a SHORT walk in the park and then went over my wife’s sisters house for a little while this afternoon.
That visit ended when he made it crustal clear he wanted to leave when he hit his aunt. 🙁
When I got home he was raging a bit as well. And he was a bit weepy.
And as bizarre as this may sound… it was good to see.
Less zombie / sleepy behavior and more autistic behavior is a good thing in my book 🙂 It means he’s healing and heading back to normal Kyle I think.
I think finally 6 days after surgery he’s feeling himself enough to know that his bandages are finally pissing him off and that he’s in some pain/ discomfort from the 2 wounds.
After writing my post yesterday about the king’s recovery I’ve learned a few things from chatting with others who’ve had the VNS Surgery and from joining a VNS surgery group on Facebook.
Here’s one thing I’ve learned…even though for many it’s a send you home the same day “procedure” and for Kyle and most children it’s a one night in the hospital “procedure” it’s still SURGERY and for many it kicks your ass big time.
Many I’ve chatted with said they were in pain & discomfort for 1-2 weeks after surgery and some were sent home with Vicodin for their pain.
I guess, stupid me, heard it called a “simple procedure” and thought he’d be back to normal in 2-3 days.
And Kyle was only sent home with instructions to give Tylenol as necessary, no Vicodin.
For the first 4-5 days even Tylenol kinda wasn’t necessary cuz he was totally out of it.
But today I think he was well enough to know that he didn’t feel well…if that makes any sense. And I expect the next few days to be filled with some rage and some Tylenol and maybe some Advil as well.
8 days til we turn the device on so hopefully he’s totally back to pain free normal before then…
8:18pm now and he’s asleep and I’m gonna watch my new tv obsession “Under the Dome”.
Just started watching it…Trying to catch up…
Written byFrank Campagna
I’m a 48 year old neurotypical dad with a 14 year old son with severe, non-verbal autism & epilepsy. I created this blog to rant about autism & epilepsy while celebrating my son who I affectionately call “the king” :-).