Sunday, November 29, 2015

Medical Issues w/ a Nonverbal Kid: If Only We Could Ask "How Are You Feeling?"



It's Sunday at 8:47am and I'm having coffee in a quiet house watching the king sleep on his seizure camera / monitor

As you all know the king has autism and epilepsy. 

On a smaller scale he also has a bit of hypothyroidism. He is on medication for all three of them. 

And as you can imagine, the epilepsy is the scariest the bunch. The autism I can deal with. The hypothyroidism is a mystery and only truly shows up in blood work. We see none of the usual signs of it. 

But the epilepsy can be scary.

And the king is going through a relatively good stretch

Monday, November 23, 2015

Autism Parent Holiday Tip: Drink Alcohol & Skip the Meal :-)













(originally written & published on November 23, 2015)

OK. I'll come clean. I purposely used that title to get your attention and to get you to click. Guilty of click bait I admit it!

However the headline is partially true.

Wifey went to a parent support group at the king's new school last week and they talked a little bit about surviving the holidays with special needs kids. 

And wifey told her story about how last year she had one of her best/calmest holidays since the king was born. 

As she told it, what she realized is the most frustrating part of any holiday for her is

Monday, November 16, 2015

A Salute to Young Adults That Work w/ Special Needs Kids & Adults











So this post is a salute to the people who work with our special needs kids.  Especially the young people.

This post has been bouncing around in my brain for months but I've been too busy or lazy to write it. 

This post is about the young people who choose to work with our special needs kids. And how I am impressed by them, how I'm in awe of them, how I salute them. 

And yes it's about the teachers, of course big props go to the special needs teachers. The King's had a lot of great teachers over the years. He's got a great one now.

But this post isn't really about them. Teachers are older and they knew what they want to do with their lives.  I'll cover their awesomeness in a future blog post

This post is about all the young people who work with our special needs kids and adults, sometimes for little more than minimum wage, at music

Thursday, November 12, 2015

Parents, We All Need a "Gandalf" In Our Lives





The king had off from school yesterday for Veterans Day and wifey and he were home alone all day. So as I was driving home from work last night I was a little worried about what I might be walking into. I had a suspicion that it might've been a rough day for wifey. 

And I was thinking on my drive home,  "I'm gonna make sure I'm in a great mood when I get home. I'm going to try to be her Gandalf!". 

No that is not a lord of the rings reference. I'm one of those wackos who's never seen or read any of the Lord of the Rings books (and unfortunately not for the reason that Joey Tribbiani says above).

Gandalf is a reference from the TV show "Friends".

There was an episode of "Friends" a long time ago where

Sunday, November 8, 2015

"Why is My Kid the ONLY Special Needs Kid Behaving Like This?"






(originally written & published on November 8, 2015)


I heard this kid screaming at Special Needs Swim yesterday.  I look over and see this little guy, maybe 3 years old screaming his head off in the very shallow end of the pool as the instructor is holding him and trying to get the majority of his body wet.  

And then I look up and see mom & dad standing on the lip of the pool and wondering what to do.  Of course they were worried about their kid.  But I knew there was more behind that look, more behind their concern.

 They were looking around sheepishly, concerned that maybe his screaming was

Tuesday, November 3, 2015

When Should We Stand Pat?



So last week I wrote how I don't believe in jinxes and how the king was going thru a great stretch behaviorally.

Wifey & I went to the Halloween party in his class on Friday and I got a lot of face time with his teacher and she said that although he usually still has a rough patch each day, the king was doing much better behaviorally.

Then after that, he had a pretty great Halloween weekend.  

So great that I said to wifey, "when is the next neurologist appointment?  i don't think we should change any meds at the next appointment.  i think we should stand pat for a change, and just leave things where they are."

As many of you know the king has

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