Thursday, September 17, 2015
The King's EEG Results & a Rough 1st Day Back
Thur 7:48pm -- I know after all of those crazy hospital stories I owe you guys an update on the results of the king's EEG.
However, there's not really much to tell.
He had six decent size seizures during the second night while hooked up to the EEG!
Boo for seizures! Yay for the fact that they caught them on the EEG!
They all came from the right side of his brain which gave the doctors a better idea of which medicines to try next.
So he's going down on one anti-seizure med and up on a new one over the next month and then we head back to the neurologist's office.
I'm not even going to mention the names of the meds because I know I'll get a bunch of horror stories in the comments with whatever med I mention.
So anyway last night he got his first dose of the new med and, of course he has a really rough first day back to school.
Lots of hitting and a rather bizarre pee-pee accident / incident.
But no seizures and no naps!
Did the new med cause the bad behavior? Who the F knows!
Is the new med the reason he had no seizures or naps today? Who the F knows!
Is he having any side effects or feeling weird on the new med? Who the F knows! If only he could tell us how he's feeling!
What I do know and what I can tell you is that non-verbal autism mixed with severe intractable epilepsy really truly sucks major balls!!
And I'm POSITIVE that if the king could talk he'd say the same thing...
THE END. That's all I got tonight.
I'm heading to sleep as soon as I get his majesty to sleep.
I still need to catch up on my sleep after 2 days with almost none.
I was literally falling asleep at wheel while in traffic on the way to work this morning.
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