Sunday, April 27, 2014

A Sunday Recap -- I'd give the day a C or a B-

Sun 8:29pm -- Im sitting in the dark in Kyle's bedroom writing this on my phone. 

He's almost asleep. 

A pretty ok Sunday is coming to a close. 

I posted this on Facebook this morning...

"Sun 10:04am -- On today's agenda:

Opening day for Spectrum Baseball. 

Then lunch in the Y cafeteria. 

Swim lesson at 1pm for his majesty. 

Taking my mom to visit my dad in the cemetery at 3pm. 

After that having my mom over for dinner at our house or taking her out for dinner... depending on the king's mood... 


Long day on tap. Please send positive vibes."

So how did today turn out?

Well there was a bit less hitting today by the king towards his subjects today...maybe? 

Highlights of the day: 

1) He sat at the table with my mom, wifey, and me during dinner time and actually ate 3 raviolis!  (So we stayed in for dinner, rather than risk going to a restaraunt)

2) My mom, wifey and me all actually fell asleep on the couch at the same time for about 3 glorious minutes after dinner while Kyle calmly laid on his grandma and played with his iPad. 

3) He sat nicely (with quiet hands)  in the Y cafeteria after his swim lesson. We actually sat there for almost an hour. I know how long cuz we almost made it thru a whole episode of sesame while he ate his lunch. 



1) He is once again the lowest functioning kid at his all autism baseball league and while all the other kids were kinda getting it, all he wanted to do was sit down on 3rd base while holding 2 balls...When it was his turn to bat all he did was sit on home plate. 

2) He had a real rough time for the first half of his swim lesson (which is extremely rare ....but after we pulled him out and he went to pee, he rallied for the 2nd half and kinda enjoyed himself.  

3) Lots of breath holding and still lots of hitting others...including his grandma.  :(
What woke us up from our 3 minute nap on the couch earlier?  A nice slap to my mom's arm from his majesty...

At least today he did most of his hitting with a nice smile on his face...

That's all I got.  3 ups and 3 downs. I guess that means the day was even-steven, maybe a C average, (maybe a B-?)

I'm gonna sign off now.  He's calmly asleep now ...and breathing normally for the first time today.  

So I think I'm just gonna sit here in the dark in his bedroom to watch and listen to him breathing normally for a few minutes. 

It's so peaceful!

Hope y'all had a great Sunday. 

Over and out!


Wednesday, April 23, 2014

No Good News, But I've Got a Yummy Dinner Waiting For Me: A Wednesday Update

Wed 8:33pm -- I'm sitting in the

dark in the rocking chair in Kyle's bedroom. 

He just feel asleep, hopefully for the night...

Today was an even worse day at school than yesterday which was worse than Monday. 

Lots of hitting others. Plus wifey even got a call from the school psychologist today asking if there was any changes to Kyle's meds...or if we had any clue what brought this on...

He was pretty ok for the 2 hours I was with him this evening... It's funny, but all is right with the world when he's eating a bag of popcorn. 

We made him one at about 7:45pm because he didn't eat much for lunch or dinner...

I know, I know... then why are we rewarding him with popcorn?

Because I'm an enabler...and because I thought that if I didn't do it now he'd be up at 2am starving and wanting...a bag of popcorn. 

Anyway while eating the popcorn all is right with the world. 

No aggression, very little breath holding... If only they can develop a med that can bring on the benefits of a low grade fever and the benefits of popcorn consumption. 


Tomorrow morning should be interesting. We have to take Kyle to get some blood work done before school...

He usually handles that pretty well...but with the way he's been this week...all bets are off...

Anyway, he's asleep and wifey is summoning me that dinner is ready. 

She made pork loin and broccolini. 

And then she'll fall asleep on the couch by 9:30pm and I'll watch episode 2 of my new fav show, "Fargo"

Love it... But it's way to violent for wifey!

Goodnight all!


Tuesday, April 22, 2014

It's Been a Rough Week So Far...A Tues Update From AD

Tues 7:24pm -- It's been a rough start to the week for the king and therefore for his subjects. 

Yesterday was his first day back to school after spring break and he did a lot of hitting of others (adults, not kids). 

Today he hit the trifecta. The note in his communication notebook said he hit even more today, plus he had two mini seizures, and to top it off he also had a pee-pee accident. 

Needless to say wifey excused herself shortly after I got home from work...and went upstairs to watch "Parks & Recreation" Season 3 in bed on Netflix so she doesn't hear all the breath holding & general craziness going on down here. 

Melatonin has already been administered and I'm just waiting for it to kick in. 

Looking back Kyle was going thru a stretch almost exactly like this a month or so back...before he got sick. 

And getting sick (flu/infection?) mellowed him out big time. And I think having antibiotics in his system for 10 days mellowed him out AND helped him have less seizures. 

Yes I googled it. And of course it's some people. (And in others it could have the opposite effect and bring on more seizures)

Anyway, thinking back, for almost 5 weeks we had delightful, happy, related, calm Kyle. 

But now he is totally "healthy" and unfortunately totally back to his pre-sickness norm from late Feb / early March ...of aggression, crazy breath holding, and too many little seizures. 

I said to wifey that there's noting better than Kyle with a

mild, low grade fever.  


But we can't pull that if this lasts much longer we'll be back visiting all his docs seeing what's the next course of action. 

Go up on his VNS device?

Go down or up on one of his seizure meds?

Or try something else?

Anyways that's my Tuesday night update. 

Hopefully this is just a blip on the radar and only lasts a couple of days and I'll have a more positive / happier Thursday update for y'all...but I'm not betting on it...I'm  a realist and I think the other shoe has officially dropped...

It's now 7:42pm and Kyle has the blanket over his head while he watches his bedtime videos. 

The melatonin gods seem to be working their magic tonight. 

Goodnight all!  

Thursday, April 17, 2014

The History Of Autism

I found this amazing infographic on the website

The original page where I found this infographic is  Go check it out because there's tons of other info down at the bottom of that page...

Also on the bottom of the page it says "Share this infographic on your site" so that is what I
am doing...



Class is now in session...


The History of Autism
Over the past century, the definition of autism and the array of disorders it encompasses has not only changed but also been subject to gross misunderstanding. Let’s take a look at a short history of autism, as well as current diagnosis rates and information.

What is Autism?
Autism is an umbrella term for autism spectrum disorder, which is characterized by: (5)
  • Constant problems with social communication and interaction across a variety of contexts
  • Repetitive, restricted patterns of behavior, activities and interests
  • Early-onset emergence of symptoms (typically in the first two years of life)
  • Symptoms that cause major impairment in social, educational or other important areas of functioning
It’s called a spectrum because of the wide range of symptoms and impairment levels children can have. Some are only mildly affected by their symptoms, while other children are severely disabled.

The Greek root of the word “autism” is “autos,” meaning “self.” Individuals with autism are generally withdrawn from social and emotional interaction, giving rise to the term. (1)

Autism: A Brief Timeline
Swiss psychiatrist Eugen Bleuler first uses the term in reference to certain symptoms of schizophrenia. (1)

Stemming from the belief that autism symptoms are caused by diet (including those high in gluten), biochemical treatments are used, and diet supplements and restrictions are put in place for children with autism. (3)

Electroconvulsive therapy is first used to try to correct antisocial and self-destructive behavior. Though controversial, this type of treatment is still used in rare cases today. (3)

“Autism” is first used to describe children who experience emotional or social issues. (1)

A definition for autism is put in place by child psychiatrist Leo Kanner. He describes autism as “lack of affective contact, fascination with objects, desire for sameness and non-communicative language before 30 months of age.” (2)

German scientist Hans Asperger detects a condition with similar afflictions that is now called “Asperger’s syndrome.” There is still believed to be a link between autism and schizophrenia. (1, 2)

Autism is falsely suspected of being caused by cold and uncaring mothers. Parentectomy, or the removal of the afflicted child from his or her parents for long periods of time, is utilized for treatment by a doctor in a study. (3)

Various treatments are tested, but there is still a limited understanding of what helps patients. Pain and punishment are still inflicted on children to try to correct antisocial behavior. The use of LSD is implemented. As a serotonin inhibitor, it is believed that altering the patient’s state of perception will help alleviate symptoms. (1, 3)

Bernard Rimland, an American psychologist, establishes the Autism Society of America, one of the first autism advocacy groups. (2)

Early forms of behavioral therapy are used primarily in the treatment of children with autism, and autism is finally categorized separately from schizophrenia. Neurosensory therapy is introduced, as researchers and doctors begin to believe that sensitivity to auditory stimulation is responsible for some antisocial behavior. (1, 2, 3)

Holding therapy, in which a child is restrained and forced to perform various social reactions like maintaining eye contact, is used. (3)

The term “autism spectrum disorder” is used, and specific tools for diagnosing the severity of a child’s case are developed. Applied behavioral therapy and psycho-dynamic therapies are typically used to treat children with autism. (1, 3)

Autism Today
Due to a more thorough understanding of the disorder and effective treatments for its symptoms, more children are getting the help they need to live more social, emotionally fulfilling lives. We now understand a lot more about the disorder and who it affects.

1 in 68
Estimated number of children affected by an autism spectrum disorder. For boys, the number is 1 in 42. (4)

Likelihood that a person will have a second child with autism if they already have one (4)

1 in 10
Number of children with autism who also have Down syndrome or another chromosomal disorder (4)

2 years
Age at which a diagnosis of autism is typically reliable. Most children are not diagnosed until they are 4 years old. (4)
Unfortunately, along with a more thorough understanding of autism has come a boom of diagnoses and fear regarding the cause of the disorder.

Increase in autism spectrum disorder prevalence between 2002 and 2010 (4)


 Hope you enjoyed that thorough "History Of Autism" 

 Class dismissed! :-) 



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Tuesday, April 15, 2014

Progress = Kyle Off From School, Wife & I Not Freaking Out!

Sometimes you don't see the progress in your kid until you look at yourself and how you're reacting to certain situations...


The king is off from school this week.  And the wife and I are not freaking out!

That's huge progress for us!

It's not fun to admit it but the wife and I used to DREAD weeks off from school. 

Kyle used to be a lot harder to handle. Spending the day with him was not easy. He was constantly in motion and really wasn't as related as he is today. 

This was way back before he was on meds and before wifey and I were on meds. 

Our life was a lot more frantic. One of the

Sunday, April 13, 2014

Kyle's Voice Sounds Like a 90s Grunge Singer...Take a Listen... :)

Lately Kyle's had a real deep voice. And he's been very vocal. 

And the wife and I think he sounds like a 90s grunge singer.

Well he's non verbal so he kinda sounds a bit like Frankenstein...  but Frankenstein doing an impression of a 90s grunge singer...

I recorded this at about 9pm on a Sunday night right before the king fell asleep....but he was making sounds like this all weekend....

See who you think he sounds like...

Just some Sunday night silliness...



If you're gonna shop Amazon anyway, can I ask that you enter Amazon by using the link above?  This way I can make a little money.  This blogging thing has been awesome & life changing for me... but I must admit that it's taking up a lot more time than I ever thought... so if I can make a few bucks it'll make it easier for me to justify....Love you all! Thanks!!

Thursday, April 3, 2014

A Thur Check In From AD... The king & I are sick... :(

Thur 6:18pm -- Long time no check in!  How are y'all doing?

We're still sick over here on Autism Avenue... 

Well Kyle and I are both sick. 

Wifey has been holding out somehow. 

Yes, that's right Kyle has been sick and out of school since last Monday. 

He hasn't been too miserable this fever...but he's got low energy and he's been napping for long stretches throughout the day.  I kinda think he's just got info a routine where he naps all day. I said to the wife "send him in for a half day! let him nap there!" 

But he's still got a nasty cough too...

So when all is said and done he'll probably miss 2 weeks of school and spring break is the week after next!

But when he's awake he's in great spirits and is extra cuddly and is doing great things on his iPad and is holding his breath less (wtf?) no seizures... which all combined to make this illness (probably the flu) a lot easier to


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