"Sun 10:04am -- On today's agenda:Opening day for Spectrum Baseball.Then lunch in the Y cafeteria.Swim lesson at 1pm for his majesty.Taking my mom to visit my dad in the cemetery at 3pm.After that having my mom over for dinner at our house or taking her out for dinner... depending on the king's mood...:)Long day on tap. Please send positive vibes."
Sunday, April 27, 2014
Wednesday, April 23, 2014
Wed 8:33pm -- I'm sitting in the
dark in the rocking chair in Kyle's bedroom.
He just feel asleep, hopefully for the night...
Today was an even worse day at school than yesterday which was worse than Monday.
Lots of hitting others. Plus wifey even got a call from the school psychologist today asking if there was any changes to Kyle's meds...or if we had any clue what brought this on...
He was pretty ok for the 2 hours I was with him this evening... It's funny, but all is right with the world when he's eating a bag of popcorn.
We made him one at about 7:45pm because he didn't eat much for lunch or dinner...
I know, I know... then why are we rewarding him with popcorn?
Because I'm an enabler...and because I thought that if I didn't do it now he'd be up at 2am starving and wanting...a bag of popcorn.
Anyway while eating the popcorn all is right with the world.
No aggression, very little breath holding... If only they can develop a med that can bring on the benefits of a low grade fever and the benefits of popcorn consumption.
Tomorrow morning should be interesting. We have to take Kyle to get some blood work done before school...
He usually handles that pretty well...but with the way he's been this week...all bets are off...
Anyway, he's asleep and wifey is summoning me that dinner is ready.
She made pork loin and broccolini.
And then she'll fall asleep on the couch by 9:30pm and I'll watch episode 2 of my new fav show, "Fargo"
Love it... But it's way to violent for wifey!
Tuesday, April 22, 2014
Tues 7:24pm -- It's been a rough start to the week for the king and therefore for his subjects.
Yesterday was his first day back to school after spring break and he did a lot of hitting of others (adults, not kids).
Today he hit the trifecta. The note in his communication notebook said he hit even more today, plus he had two mini seizures, and to top it off he also had a pee-pee accident.
Needless to say wifey excused herself shortly after I got home from work...and went upstairs to watch "Parks & Recreation" Season 3 in bed on Netflix so she doesn't hear all the breath holding & general craziness going on down here.
Melatonin has already been administered and I'm just waiting for it to kick in.
Looking back Kyle was going thru a stretch almost exactly like this a month or so back...before he got sick.
And getting sick (flu/infection?) mellowed him out big time. And I think having antibiotics in his system for 10 days mellowed him out AND helped him have less seizures.
Yes I googled it. And of course it's possible...in some people. (And in others it could have the opposite effect and bring on more seizures)
Anyway, thinking back, for almost 5 weeks we had delightful, happy, related, calm Kyle.
But now he is totally "healthy" and unfortunately totally back to his pre-sickness norm from late Feb / early March ...of aggression, crazy breath holding, and too many little seizures.
I said to wifey that there's noting better than Kyle with a
mild, low grade fever.
But we can't pull that off...so if this lasts much longer we'll be back visiting all his docs seeing what's the next course of action.
Go up on his VNS device?
Go down or up on one of his seizure meds?
Or try something else?
Anyways that's my Tuesday night update.
Hopefully this is just a blip on the radar and only lasts a couple of days and I'll have a more positive / happier Thursday update for y'all...but I'm not betting on it...I'm a realist and I think the other shoe has officially dropped...
It's now 7:42pm and Kyle has the blanket over his head while he watches his bedtime videos.
The melatonin gods seem to be working their magic tonight.
Thursday, April 17, 2014
I found this amazing infographic on the website http://www.masters-in-special-education.com/
The original page where I found this infographic is http://www.masters-in-special-education.com/history-of-autism/ Go check it out because there's tons of other info down at the bottom of that page...
Also on the bottom of the page it says "Share this infographic on your site" so that is what I
Class is now in session...
- Constant problems with social communication and interaction across a variety of contexts
- Repetitive, restricted patterns of behavior, activities and interests
- Early-onset emergence of symptoms (typically in the first two years of life)
- Symptoms that cause major impairment in social, educational or other important areas of functioning
Holding therapy, in which a child is restrained and forced to perform various social reactions like maintaining eye contact, is used. (3)
Class dismissed! :-)
If you're gonna shop Amazon anyway, can I ask that you enter Amazon by using the search box above? This way I can make a little money. This blogging thing has been awesome & life changing for me... but I must admit that it's taking up a lot more time than I ever thought... so if I can make a few bucks it'll make it easier for me to justify....Love you all! Thanks!!
Tuesday, April 15, 2014
The king is off from school this week. And the wife and I are not freaking out!
That's huge progress for us!
It's not fun to admit it but the wife and I used to DREAD weeks off from school.
Kyle used to be a lot harder to handle. Spending the day with him was not easy. He was constantly in motion and really wasn't as related as he is today.
This was way back before he was on meds and before wifey and I were on meds.
Our life was a lot more frantic. One of the
Sunday, April 13, 2014
Well he's non verbal so he kinda sounds a bit like Frankenstein... but Frankenstein doing an impression of a 90s grunge singer...
Just some Sunday night silliness...
If you're gonna shop Amazon anyway, can I ask that you enter Amazon by using the link above? This way I can make a little money. This blogging thing has been awesome & life changing for me... but I must admit that it's taking up a lot more time than I ever thought... so if I can make a few bucks it'll make it easier for me to justify....Love you all! Thanks!!
Thursday, April 3, 2014
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