Sunday, October 19, 2014
Why I Sometimes Prefer To Be Out All Day w/ My Autistic Son
It's 4:01pm on Sunday. Wifey has plans this evening. She just left. She probably won't be home til after 9.
So the king & I are home alone. He's holding his breath like crazy which sounds like fingernails on a blackboard to me.
And I'm staring at 5 hours til he goes to sleep with nothing on the agenda.
And that scares the sh-t out of me.
He's fine being at home it seems. He might even prefer it. But there will inevitably be a few rough moments.
So, I'm almost tempted to take the king to the supermarket right now. We don't need anything (except bacon) :)
But I just need to shake up the day a little & break things up a bit.
Lately I am so much better when we have plans all day long...even on the extremely rough days with his majesty.
I thought of this a few weeks back when we drove out to the NJ shore on a Sunday afternoon.
It took us an hour and a half to get there and over 2 hours to get home and all told we were probably on the beach for less than 4 hours.
On paper that makes no sense. And years back I would resist these things cuz I was scared of a Kyle meltdown.
But recently I've learned that 12 rough hours at home is worse than 12 rough hours out of the house. At least for me.
I know what you're thinking. It's all about you again... And... Maybe he wouldn't be as rough at home vs on the beach.
Maybe you're right. But wifey and I like the beach. And we don't ever want to become prisoners in our own home because the king would rather stay home.
I've written before how we make it a point to bring Kyle everywhere sometimes whether he likes it or not.
And we are gonna continue to do that for as long as he and/ or society will allow.
But getting back to that beach outing...
Kyle usually likes the beach a lot.
And even on his roughest/ worst days Kyle will always have a few shining / happy moments.
So on a rough day going to the beach breaks things up a bit. I think in my brain (yes it's all about me) :) a rough car ride there, some rough moments on the beach, and a rough car ride back breaks the day into more manageable rough chunks rather than 12 rough hours straight at home.
And during those easy going moments I need to pick my head up and realize I'm on the beach and staring at the glorious Atlantic Ocean.
Any way I'm babbling. I hope this make sense and that some of you can relate.
Anyway, time to break up this day. I gotta get his shoes on. The supermarket awaits. I'm waiting for wifey to text me a list.
Oh wait, what's this? He just brought me to the bathtub and indicated that he wants a bath...
"Good communicating buddy!"
Ok, first bath, then supermarket.
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