(originally written & published on August 12, 2014)
And today is the day. This year we are staying for 10 days! It is Wednesday at 6:58am and we'll leave for our vacation as soon as wifey & the king wake up.., and as soon as the heavy rain passes.
For example, in the real old days, in 2009BM (Before Melatonin), we had a kid that would get up at the crack of dawn and stay up really late and couldn't stand being in our room/cabin. So he would have us out all day long. We'd be at breakfast as the restaurant was opening up. And we'd have to drive around for an hour at night to get him to sleep in the car before carefully transporting him to the room.
But that's a silly example...
What this blog post is really about is how for as long as I've had this blog (since 2011), every August we've been heading off on vacation, with a somewhat major crisis with Kyle hanging over our heads or looming off in the distance in the weeks after our trip. And how we would all still enjoy our trip immensely, and be sad to go home, and we look back at pics and think back upon those vacations fondly...but in reality we were vacationing thru some real stressful times...
In 2011, Kyle was smack dab in the middle of his "summer of rage" and was prone to many meltdowns, (sometimes violent) per day. And we had to plan every day and every activity with an escape plan in place. It was a rough week. Plus while we were on vacation wifey was making frantic phone calls to our school district and fighting to make sure he had a school to go to in September. (which in turns out he didn't...2 weeks, no school, lawyers involved...yada yada yada).
Anyway, all in all we had a pretty darn good trip that year, lots of happy pics to share on FB, but thinking back it was a pretty stressful time.
In 2012, we went away 3 months after Kyle had his first seizure. So epilepsy was new to us and I was always on edge. And while on vacation he started having these weird quick dizzy spells where he would fall backwards (we found out in October that these were "drop seizures"). Also while on vacation that year we discovered a large lump on one of Kyle's testicles. While on vacation we had conversations with his pediatrician who said it sounds like a hernia. And that's what it was. And he had hernia surgery in September of that year.
Anyway, all in all we had a real good trip that year, my mom even came up for a few days & joined us, lots of happy pics on FB, ...but thinking back it was a pretty stressful time.
Then last year in 2013, we hit the trifecta, we had 3 things to stress about last August when we went away.
(1) Kyle had the return of the mysterious right leg limp, and was happily limping quite badly throughout our trip and we had a doctor misdiagnose it the day before our trip which truly freaked us out.
(2) Kyle was slowly going up on a new seizure med, while slowly coming off another seizure med and was sleeping like crazy and when he was awake he went thru stretches throughout the day where he was zombie like. All these meds were controlling the seizures but we didn't like the Kyle they left behind. (In fact while on the trip that year we called his neurologist and said "this is pathetic. we are gonna pull him off one of the meds asap. we'd rather have our kid back and risk bringing on more seizures..."
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