Monday, June 2, 2014

Seizures at School: "There's Nothing I Can Do"



 Kyle went to school today. At about 11:40am the wife and I had the following text exchange. 

She's grey and I'm blue. 





When I got home from work I heard the whole story. 

The teacher called wifey while she was clothing shopping for Kyle in Old Navy. 

The teacher said "he's had a few seizures this morning" 

Wifey runs out of the store and says "a few?  how many?" as she's heading towards her car about to race over to the school. 

Teacher: "well he had one small seizure then took a short nap shortly after he came in . then he just had another small one and is napping again now"

And wifey stopped, thought about it for a minute and said to the teacher, "you know what?  there's really nothing I can do"

And that's the thing with this evil bitch known as epilepsy. If he's not having a huge long seizure that's worthy of a hospital visit or a cluster of medium size / length seizures that warrant some emergency med there really is nothing we can do. 

He is just as safe if not safer at school.

Wifey: "there's really nothing I can do"

Teacher: "I know. I just thought you should know"

Wifey: "thanks. just watch him closely in his sleep and call me if he has another one and I'll come get him."

She didn't hear from the school the rest of the day. 

And when she picked him up they said he had a fine, pleasant, happy, seizure free rest of the day. 

At 2:53pm after school we had this text exchange. 



And that indicated to me that all was back to normal... Or whatever passes for normal around our house this week.  :)

That's all I got...just a little slice of life about our other ugly nemesis epilepsy. 

Am I allowed to say that I hate epilepsy? Or is that insulting my child?  :)

LOL

By the way let me state right away that Kyle's school and his teacher did absolutely nothing wrong in this scenario. That's not what this post was about. We got no beef with them. They are ACES!

:)

THE END. 


13 comments:

  1. Somedays there's nothing you can do other than just keep on keeping on.

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  2. Good thing they let Kyle nap in school after he's had a seizure because I bet some public schools don't let kids take naps after they have seizures because they force academics down there throats and if they take naps they think they lose academic progress! Autism acceptance!

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  3. I love your blog. My girlfriend has an 8 year old with moderate to severe autism. I hear people say "within the spectrum." I love this boy to death as if he were my own. I need some pointers. My girlfriend and her son are moving in with me from a place he's been for 3 years. Any ideas on how to make his transition easier on him

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    Replies
    1. Talk to him about it for a little while before it happens. Show him where his room will be and give him time to get used to the idea. My some is moderate functioning and does much better if we talk about the change before it happens for a couple of weeks. No matter what there will be issues with the change but prepare him as much as possible and just be patient and love him.

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    2. If at all possible, give him input. Where should this go, is that going to be better for you over there or over here? Do you want to do a dry run first, and sort of test out how it is sleeping here so you can make changes to it before we get all your stuff? Can you count the moving boxes for me as the movers bring them in? If he draws, have him draw a picture of his new room, and where he wants his stuff.

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    3. Let him start keeping some of his stuff in his room before the change. Or even better, buy him some duplicates so it's not all so suddenly different. Even small things that are the same as he has like a bed-side lamp/nightlight/bedsheets/curtains. Little touches go a long way. Combined with a few test nights should help some bit. Good luck! :)

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  4. Epilepsy is something I am just learning about as my 6 year old has recent seizure activity. It is so hard to watch. We have our first neurologist appointment tomorrow now that we have had the EEG and MRI done. Anxious for a confirmed diagnosis and a plan for treatment!

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  5. Something similar happened to last week my son also has severe autism and speech impairment, I got a call he had bit a regular ed student and a substitute teacher ,and he was in a really good mood that day,so there really wasn't anything I could do.(:

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  6. The Tomes FamilyJune 2, 2014 at 11:08 PM

    We Hate them as well it does get a little easier though... Our seizure torment started the last day of pre school he was 5 an he is now 21 his last one was Saturday it hurts my heart every time but we have adjusted better through them :) Stay strong :)

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  7. I had epilepsy until I was in my 20s. I never noticed the small ones even though sometimes it was hard to get my brain back on track. The big ones hurt like hell and all I wanted to do was sleep after.

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  8. Absolutely, you may hate Autism, Epilepsy, Seizures in general, ADHD, and any medication side effects, because they all suck!! I often think the school nurses think I'm the crazy one when I say: "...and you're calling me for that?!?!?!" I get that they need to keep us informed, but I once got a call for a hangnail. I'm pretty sure it could have waited until I read it in the communication book. If a particular behavior (like mini-seizures, or in my case, my son has headaches/migraines) are a regular part of our children's daily behavior, why make those awful worrisome calls every other day?? So, AD, thanks for letting all us other Autism Parents vent here. You are very much appreciated.

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  9. i estoy dando este testimonio porque soy feliz Mi nombre es señora. Dona Smith de Houston, taxes.i nunca creyó en hechizos de amor magia o hasta que me encontré con este lanzador de hechizos una vez. cuando fui a África en diciembre de este año en una cumbre de negocios. i ción a un hombre llamado dr. ADAGBA.He es poderoso que podría ayudar a que lances un hechizos para traer de vuelta se ha ido, amante de mal comportamiento de mi amor en busca de alguien que te ame, traer de vuelta perdido dinero y el dinero hechizo o conjuro para una buena job.i 'm ahora feliz y ; un testimonio vivo cos al hombre que había querido casarse me dejó 3 semanas antes de nuestra boda y mi vida estaba patas arriba porque nuestra relación ha estado en marcha durante 2 años ... yo realmente lo amaba, pero su madre estaba en contra de mí y no tenía buena pago de trabajo. Así que cuando me encontré con este lanzador de hechizos, le dije lo que pasó y le expliqué la situación de las cosas a él .. Al principio estaba indeciso, escépticos y dudosos, pero yo sólo le di una oportunidad. y en 6 días, cuando volví a los impuestos, a mi novio (ahora es mi esposo) me llamó por él mismo y vino a mí pidiendo disculpas que todo se había resuelto con su mamá y su familia y él tiene una nueva entrevista de trabajo por lo que deberíamos casarnos .. i no lo creía cos del hechicero sólo pidió mi nombre y mi nombre de los novios y todo lo que quería que hiciera ... así que estamos felizmente casados ​​y ahora estamos esperando nuestro niño pequeño, y mi marido también tiene un nuevo trabajo y nuestras vidas se hicieron mucho mejor. por si alguien necesita el lanzador de hechizos un poco de ayuda, la dirección de correo electrónico adagbaspiritualtemple@yahoo.com Gran ADAGBAi muchas gracias gracias de 1000000 veces .. si no me hubiera sido losted y desperdiciado gracias. por favor, asegúrese de contactar a él por las dificultades financieras bien .. Lo que un hombre poderoso como el Dr. ADAGBA .. él es tanto poderoso .. \ \ le enviaremos un correo electrónico para cualquier dificultad .. adagbaspiritualtemple@yahoo.com

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