(originally written & published on June 12, 2011)
Many have asked, so here is a list of things we've tried with Kyle with little or no success over the past 4 years... This is all I remember off the top of my head. If I think of any others, I will add them and repost this note... All of these were tried based on the recommendation of a DAN Doctor
---GFCF DIET for almost a year and a half.
--- HBOT, (Hyperbaric Oxygen Chamber)... rented one, had it in my house for a month. Kyle and I would go in there for a few hours each night. He would fall asleep in there. I felt no different. Kyle didn't appear to get anything out of it. Cost me over $2k
--Treated him for yeast with the diet of antifungals, Nystatin, probiotics and alot of other supplements in this category.
--Vitamin B12 injections
-- Treated him as if he had Lyme diease with a round of Valtrex & other supplements...
-- Secretin injections.
-- Prescription Meds we've tried based on the recommendation of a DAN Doctor include...
--Things that are in my cabinet that I can't remember what they are for or what they were supposed to help with...
Oil of oregano
That's all I can think of right now. The only thing that ever truly worked was good ol Melatonin for sleep and good ol' Senokot for helping loosen stools and making him more regular. Everything else did little... or nothing... or helped a bit but came with a new side effect that we thought wasn't worth it... or made things worse.
Right now our biggest challenge is tackling Kyle's ADD & ADHD. He is so hyper, stimmy, cant sit still that we feel it gets in the way of him making ANY progress / learning. If we can get some of that out of the way... without making him a zombie / stripping his personality maybe we can see some real progress for the first time in several years...
That being said, this may be controversial, but right now I'd try another prescription med (that didn't have decreased appetite as a possible side effect) over any new biomedical treatment or supplement. At least I know what to expect and my insurance covers it (minus a copay) vs spending $30+ on bottles of
NOSITOL ~4000 mg/day
5-HTP 150 mg/day
TAURINE 2000 mg/day
GABA 2000 mg/day
ZEN (L-Theanine) 400 mg/day
which were the next 5 things my DAN doctor was suggesting we try. One at a time for 2 weeks....
Anyway, that's my note for today. I will add more things when I remember them.
Listen guys. We went to 2 of the most well respected Dan doctors in the US. They both do speaking engagements around the country and at Dan conferences. So we went by what these 2 experts suggested.
Also as I said in my note about what weve tried. Those were listed "in no particular order" and were stretched out over a 5 year period.
We tried each thing by itself in the order that they suggested for the length they suggested.
So I'm not going to start second guessing the doctors. That'll drive me even crazier!!! ----------------------------------
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